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This fundraiser ended on 12/30/11

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To help offset costs of raising our g-tube dependent congenital diaphragmatic hernia survivor and miracle baby!

On November 22, 2011 our beautiful baby boy entered this world with a birth defect called CDH or congenital diaphragmatic hernia. This is a birth defect that is as common as spina bifida but not talked about. 50% of these babies die soon after birth. We were in the lucky 50% where our son lived. Now after a 7-week stay in the NICU in a city 6 hours away from our own we returned to a new life with our sweet baby boy. Now that we are back home we have many medical costs associated with his special condition at birth. He has therapy once a week for OT to help get his muscle tone and oral skills back. After being on a ventilator for so long he never learned how to eat or drink from a bottle so he uses a g-tube for nutrition. Our monthly expenses add up and I am hoping to raise a little money to offset the expense of x-rays, doctor bills, medicine needed for reflux, and chiropractic visits so he doesn't develop scoliosis or internal adhesions. Any and all support is greatly appreciated! If you want to see our miracle child more here is a news story they did about him and a little about our road to keeping him here- http://www.fox2now.com/news/ktvi-fox-files-miricale-baby-20110203,0,2176501.story

Update: Well we have stopped going to the chiropractor as it was getting to expensive to drive there and of course the treatment isn't covered by insurance. BUT we have great news that we are weaning Flynn off of his feeding gastronomy tube! So far so good with him eating by mouth some solids and a little out of the bottle. He is doing well but not gaining weight yet. We are trying to get him an RSV shot as he had to be hospitalized last year after his NICU release due to RSV. It is a battle with our insurance company to cover it and at $2000 we simply can't afford it by ourselves, but hopefully our pediatrician can convince them. AND best news of all is that our little boy will be 1 soon! We still can't believe he defied the odds and is still here with us, we feel blessed everyday!
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