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$4,315 of $7,500
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66 donations

This fundraiser ended on 12/01/11

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Dan "The Man" Marley has been diagnosed with Keratoconus. His family and friends are uniting to raise money to help pay for his surgery.

There is nothing more heart wrenching than having to tell your 18 year old that he has a debilitating eye disease and without the proper treatment he can lose his peripheral vision and possibly blindness. Well, back in 2010, that was something Chris and I had to tell our son, Dan. That Eye Disease is called Keratoconus.

Keratoconus, aka, "KC", is a non-inflammatory eye disease in which the normally round dome-shaped cornea progressively thins causing a cone-like bulge to develop. This results in significant visual impairment.

In Dan's early stage, eyeglasses and soft contact lenses were used to correct the mild nearsightedness and astigmatism caused by the early stages of Keratoconus, at which time he was not correctly diagnosed. As his disease progressed, and as his corneas thinned and changed shape, rigid gas permeable (RGP) contact lenses were our next step. Those contact lenses were carefully fitted, and required frequent checkups and new lenses every six months. Unfortunately, over time, Dan's eyes began to worsen and now on a scale of 1 to 10, 10 being perfect vision, Dan’s left eye is now a 2 and his right eye an 8. Those lenses are becoming harder and harder to fit Dan, and eye glasses can only help so much. As Dan’s eyesight worsens, the reality of potentially losing his peripheral vision or sight becomes a stronger possibility.

We have exhausted every resource possible. Our next step before Dan becomes a candidate for cornea transplants is a new “experimental” treatment called Corneal Crosslinking Therapy, aka CXL, which could potentially halt the progression of his Keratoconus. You can read more about this treatment in the link below. Again, this treatment is experimental and still under investigation and has not been FDA approved in the US, but, the results around the world are very promising and the procedure has been very successful.

We are hopeful that CXL will work. If not, Dan will require cornea transplants, which is a surgical procedure that replaces the Keratoconus cornea with healthy donor tissue.

The money you donate will enable us to offset Dan’s medical expenses that are not covered by any insurance company at this time.

If you have any questions, or suggestions or just need to contact a representative for the family please call Maria Marley (Dan’s Mom) at 732-208-9116 or e-mail at cmmarley@aol.com or mail your check to Daniel Marley, 4 Baron Court, Manalapan, NJ 07726.

Thank you in advance for your donation.

To find out more information about Keratoconus, please visit www.nkcf.org
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