Sam's Happy Feet

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This fundraiser ended on 02/25/12

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Friends & family of Samuel Eaton raising funds to be used for his "Happy Feet" medical costs and related expenses not covered by insurance.

Samuel was born with a rare 16th chromosomal genetic abnormality; so rare that there are no other documented cases. He is truly one of a kind. Sam also has hypotonia, static encephalopathy, severe speech apraxia, and bilateral skew foot. Whether his physical, intellectual and speech impairments are related to his genetic abnormality or not is unknown.

Regardless, Sam is an exceptionally loving boy with a larger than life personality. We are always in awe of how many lives he has touched. He gives of himself unconditionally.

Sam is in a wonderful self contained class, and receives regular speech, occupational and physical therapy. He has been receiving some sort of therapy and resource care his entire life and has always had so much support and love surrounding him. We are very thankful.

Recent orthopedic surgery on both feet has created a financial need for the Eaton family. They are asking for help with medical costs and related expenses not covered by insurance to help get and keep Sam's feet just as happy as they can be.

More Information
Since birth Sam has been receiving orthopedic care for his foot deformities. He wore his first casts at 2 weeks and has been through many non-surgical attempts to correct his feet before surgery was done.

The casts on his feet were to attempt to force them straight. When that didn't appear to work, he was prescribed orthopedic sandals with a reverse last. When those weren't strong enough, he continued with them plus wore booties at night that had to be torqued out.

Around two when Sam started being able to scoot on his feet/toes using a variety of therapy walkers, the sandals offered no protection for his toes and he was prescribed orthopedic sneakers with a straight last. As he began walking independently later that year, and wearing out of the outsides of the expensive orthopedic sneakers because his feet weren't shaped any better than they ever had been, he was dismissed from them and put into whatever shoe we could fit onto his feet.

Surgery would eventually be necessary, but could not be done until his bones were calcified. The deformities of his feet were so severe that his doctor could not believe that he was ever able to support himself and walk independently. Without the surgery, he was looking at a lifetime of worsening pain and risk the ability to walk. We can't even describe how messed up his bones were; it's a miracle he was able to balance on them.

Sam has always been very aware of his "hurt feet" and has asked about "when open my feet knife, no mo' boo boo feet" daily. His feet hurt, inside and sometimes outside. The skin under his toes split open regularly from the torque of his bones. Additional surgery will be necessary as his bones complete growing. One step at a time, we're saying goodbye to Boo Boo Feet and hello to Happy Feet.

Additional Questions You May Have
What is hypotonia?
Hypotonia is a medical term used to describe decreased muscle tone. Normally, even when relaxed, muscles have a very small amount of contraction that gives them a springy feel and provides some resistance to passive movement. It is not the same as muscle weakness, although the two conditions can co-exist.

What is static encephalopathy?
Permanent or unchanging brain damage. The effects on development depend on the part of the brain involved and on the severity of the damage. Developmental problems may include any of a range of disabilities such as cerebral palsy, learning disabilities, mental retardation, PDD, speech delays, attention deficits, hearing & vision impairments, oral motor problems, etc.

What is speech apraxia?
Childhood Apraxia of Speech is a motor speech disorder. For reasons not yet fully understood, children with apraxia of speech have great difficulty planning and producing the precise, highly refined and specific series of movements of the tongue, lips, jaw and palate that are necessary for intelligible speech.

What is bilateral skew foot?
Rare complex foot deformity of malalignment of the tarsals and metatarsals, Sam's involves both feet. He was originally diagnosed with metatarsus adductus and tibial torsion.

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