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This fundraiser ended on 11/25/10

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I am raising money for Radiation Therapy. I have Trigeminal Neuralgia also known as the “suicide disease.” I want to be pain free and the Radiation Therapy is my only option at this time. The pain is excruciatingly painful. I have not lost hope

I am a mother of 2 beautiful children and a wife but I suffer from many afflictions that most doctors, neurologists, neurosurgeons have no explanations for. I have Trigeminal Neuralgia also known as the Suicide Disease this disease affects people 30 years older than me and less than 1 in 15,000 people have it. It affects one side of my face but this last year I developed it on the other side indeed this is more rare to have unless you suffer from MS they have not diagnosed this but that is next on the list with Gamma Knife surgery. I have suffered from this for 3 years now well the bills are pilling up but that was not the last condition to arise I ended up in the ER suspecting a blood clot in my lungs they did a CT scan come to find out they found no blood clot but instead they found a tumor in my Adrenal gland. I am not sure what to do next really Adrenal gland tumors can affect your entire life from hormones to the far side death.
I wish I could say that  was all thy have found but here is the next, lesions on the brain with angiomas as well. I need donations for Gamma Knife surgery as well as medical bills. I can tell you this... " I have not lost hope not one day... but I just need a little help along the way!"

 My first condition was found in 2004 after 11 miscarriages I was found to have 2 blood conditions one called Plasminogen Acticator inhibitor deficiency the other called methyltetrahydrofolatereductase Defect these of course started my medical bills but was able to carry my daughter and then 2 years later my son thankfully. But shortly after my son was born I found out I had carpal tunnel syndrome and then more came after 2008 I was diagnosed with Trigeminal Neuralgia. And from there things progressed on 1-22-2010 I got a report from my MRI and MRA scan which said I have a left frontal DVAM/ venous angioma and a second atypical DVAM/ venous angioma involving the right globus pallidus.  Also in the report was Increased white matter signal more on the left than the right hemisphere of the brain which are peripherally located. Thay also found that there is early branching opercular branches. And then just shortly after this was my next Scan thy found a tumor on my right adrenal gland this was found on April 9, 2010 on a CT scan and confirmed on and MRI as well. I was also found to have trigeminal neuralgia on the left and right side of the head as well confirmed on 1/22/2010. The fist condition causes blood clots which lucky for me has only effected me when I am pregnant but the other conditions cause a lot of pain in my face and across my body. 

 

All of the money will go to doctor bills and medication for my care.

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6/17/2010 Newest addition thy have sense taken me off my medication because my latest problem has been my body is rejecting the medication.

6/26/ 2010 I saw the neurosurgeon and my neurologist both seem to think that MS might be the cause of my Trigeminal Neuralgia and I was told that Gamma Knife maybe my only option to at least be pain free for a few years. The surgery costs over $50,000.00 for one side and I need both sides done. And I dont mean want for a quality life and not having to be drugged for years to come thy say it may take the pain away forever! But of course the price tag is more than me and my family can afford. So I have come after 3 years of suffering to ask for help.

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7/19/2010 Radiation therapy is just around the corner had my visit with the Doctor that is going to preforme the radiation treatments. I am told I will be held in place with a halo so thy can administer the highest dose of radiation to the trigeminal nerve. This whole proses will take a months time for prep work such as MRI's and scedualing. 

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