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This fundraiser ended on 07/21/12

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Fight unfair, terminal, orphan diseases and nuerological impairments!!

Nora, who' six years old has been diagnosed with a rare, terminal disease that has no known cure. It has made her have seizures, lose her sight and have mental and physical handicaps, she can't really talk, is hand fed and she has been suffering for over three years. Nora was born a normal, brilliant, little girl. Battens didn't present itself as a baby. Her cells are incorrect. They are lacking a sugar enzyme that glues the cell together so they function correctly. The cells cause damage to the body by building up toxins in her brain and body which shuts it down. There is no cure as of yet.
Battens has many different types and it affects all ages and races. Battens has similar characteristics to Autism and behavioral disorders. It is often misdiagnosed and takes a long time to find the underlying problem.
Also, there is another little boy with Autism. Autism spectrum disorder (ASD) is a range of complex neurodevelopment disorders, characterized by social impairments, communication difficulties, and restricted, repetitive, and stereotyped patterns of behavior. A milder form known as Asperger syndrome. ASD varies experts estimate that six children out of every 1,000 will have an ASD. Males are four times more likely to have an ASD than females” ~ NINDS
This is why this is a joint fundraiser.
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