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This fundraiser ended on 09/30/10

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Fight For Hope

 

I would like to bring to your attention the story of an amazing little girl and her family’s struggles. My sister Asija found out that she was pregnant in April 2009. During this time her husband was offered a job in a new state. She made the choice to take a leap of faith and move from Minnesota down to Texas where she didn’t know anyone and had no connections to anything. Then her life changed. At 23 weeks she was having a lot of pain and her water had just broken. She went in and the doctors gave her a choice, let her child be born and let her slip away forever or try and hold her in as long as possible with no guarantee's that the child would survive. So a choice was made. She was going to do everything in her power to save her baby. That fight resulted into two weeks of bed rest in the hospital and then her placenta ruptured. My niece Amayia was born on September 19, 2009 at only 25 weeks and only 1 lb 13 oz. From the very start this little girl had shown everyone she was a fighter. She was pulling on her cords and trying to cry from the beginning. When she was 3 weeks old she developed N.E.C (http://preemies.about.com/od/preemiehealthproblems/f/nec.htm). Parts of her intestine and bowel began to die. The Dr's were forced to give her surgery right there in the NICU due to how unstable she was. She had a lot of her short intestine and some of her bowel removed. During her stay in the NICU she had a total of 6 surgeries. She had to have holes in her intestines fixed and some more bowel removed. My niece was FINALLY released after 8 1/2 months in the NICU on June 1st 2010. She was sent home with a feeding tube and an IV in her chest. This little girl was struggling with gaining weight due to her "SHORT BOWEL SYNDROME" (http://en.wikipedia.org/wiki/Short_bowel_syndrome). Asija and the doctors have begun to discuss possible transplants (liver and bowel) and more surgery options. On July 17th 2010 Amayia woke up with a 101 temp. Her mom gave her Tylenol and broke the fever; however, Amayia was not acting herself. Her mom ended up bringing her to the ER at Dell Children's in Austin , TX that night and they admitted her. After several tests we had discovered she had bacteria in her blood. From there she snow balled down hill fast and furious. Her tummy started to hang onto air and was getting bigger which caused her other organs to get smashed, her lungs to fill with fluid and she began to struggle. First it was her breathing. When we discovered her blood oxygen level dropping, she was moved to the PICU where she was intubated. Things just kept getting worse. As her organs continued to fail and she needed more blood products they decided to give her surgery where they took some of her intestines OUT of her body and placed in a bag to relieve some of the pressure to her organs, and we were hoping she would begin to pee and breathe easier. To our sadness that did not happen that way. For the last two weeks it has been on big roller coaster ride after another. Amayia is now in a medically induced coma, she's on dialysis, she's practically on permanent blood products, and she’s already had to have 7 surgeries in the past two weeks. Since she has been in the hospital she gone from bad to worse, to 1000 percent better, back down again and just about the time you want to give up she pulls through again. The doctors say that everything that is currently wrong “individually” is not a problem and is curable, but everything all at once they just can seem to figure out. Every time that they close her up, she starts bleeding uncontrollably and they have to reopen her. That is why she has had 7 surgeries in the last 2 weeks. I know how much of a struggle all of this is for her. I honestly can’t imagine going through any of this like she has! MY NIECE IS SO STRONG! Not only is she strong and trying to keep that way, but my sister is the strongest woman I know! Unfortunately to add to the sadness and pain that she is going through, but she is also going through a divorce due to irreconcilable differences. I know that some day’s it seems like her whole world is crumbling down around her. I know that she tries her best to do the best that she can for her other girls (she has two older daughters, Kariece and Layla), but it's so hard. Imagine having all of this going on with your infant daughter who hasn't seen 11 months yet, not being able to work due to a constant life and death situation where you child needs constant care and attention, worrying about having enough money to pay any of your bills and worrying if you’ll be able to get to the hospital. Even the simplest thing like buying school items for your girls is a struggle. Through all of this I just want the world to be aware of this wonderful little girl, her family and if nothing else I'd just love for everyone to know that life is too short to sweat the small stuff and be grateful for what you have. I know that most everyone on her FB page has never met her, but already she has over 400 people that are praying w/ her, for her, who feel the highs when she's doing great and the lows when she just barely hanging in there! PLEASE HELP US SPEAD HER STORY! Maybe if we are lucky a doctor will see her story and be able to save her life so she can LIVE! Thank you for reading this! http://www.facebook.com/notes/amayia-project-hope/broken/137192966316345#!/pages/Amayia-project-HOPE/134472676591361
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