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$22,086 of $30,000
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84 donations

This fundraiser ended on 03/06/11

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I'm running 350 miles for Chloe Jean Bonilla. All funds will be used for liver transplantation costs and family-related expenses.

Her mother (Karen Chechette-Bonilla's) thoughts:

On June 3, 2010, my beautiful little angel Chloe Jean was born weighing in at 8lbs 4oz. As I lay on the operating table waiting for that miraculous first cry, I knew something wasn’t right. Our baby was blue and we were told she would need to be rushed to Miami Children’s Hospital. We had known from the time I was 24 weeks pregnant that she had a cyst in her abdomen, but we were also told time and time again that it was probably nothing to worry about. As we would soon find out, we had everything to worry about. Our lives were about to be changed dramatically.

Chloe was diagnosed with a cholodochal cyst. This is a cyst that resides in the bile ducts of the liver. It doesn’t allow the bile to flow efficiently to the small intestines. This in turn causes scarring of the liver and severe liver damage. Chloe went home after 7 days in the N.I.C.U. We were told that she would need surgery in a few months, but to take her home and let us start being a family. We were scared but confident that she would be OK. We all fell in love with this blue-eyed baby! Chloe was home with us for just 2 months when she started turning jaundice. We immediately went to Miami Children's Hospital to have her evaluated. We were told that she needed surgery to remove the cyst and they would also have to take out her gallbladder and re-route her liver to the small intestines. The chief surgeon told us that it was a major surgery that would take about 5 hours. My husband (Aly) and I were terrified for our baby but we also knew there was no other option if we wanted our baby to live.

To say that seeing our baby in so much pain after surgery was excruciating is an understatement. There are no words to describe how amazing Our Chloe was. She was such a little fighter and was able to go home after only 6 days. I would love to say that this is where our story ends, but it is only the beginning..

10 days after surgery, Chloe started running a fever, so we rushed her to Miami Childrens Hospital again, where she was admitted. She had cholangitis, which is an inflammation of the liver. We ended up staying in the hospital for three weeks. Being away from my other three children (Cameron, Alex, and Ava) was very difficult, but I couldn’t leave this precious baby. Watching her big blue eyes fill with tears while being stuck 8 times because they couldn’t get an I.V. going was unbearable. Chloe eventually went home, but three weeks later the cholangitis returned and we did another three weeks at MCH. They ran test after test, but Chloe just wasn’t getting better this time. That’s when we were informed of the terrible news. They told us she had a rare condition called biliary atresia. There is no true cure for this liver disease. She would eventually die without a transplant.

Recently, Chloe took a turn for the worse and we were sent to Jackson Memorial Hospital, where she will eventually receive her liver transplant. We are in the process of getting all the pre-evaluation testing done. The transplant team seems to think it will happen within the next month or two. While we wait, our little angel gets sicker and sicker.

My husband (Aly) and I are learning all about liver transplants and how financially crippling they can be. Medication alone can run from $1,000 to $2,000 a month for the first year. A transplant can run between $100,000 to $250,000+ and our health insurance only covers so much. With the help of our friends, family, and acquaintances, we know this huge burden will be lightened. Please pray for our little Chloe and if you can, it would be amazing if you could donate to help out our family.

To make a donation using a credit card, simply click on the “GIVE NOW” button located in the upper right hand corner of this webpage. If you would prefer to make a donation by check, please make the check payable to:

Chloe Jean Bonilla (include the account number 898029483344)

Mail to:

Bank of America
P.O. Box 31900
Tampa, FL 33631-3900

Any other correspondence can be mailed to:

Aly & Karen Bonilla
6595 Rainwood Cove Lane
Lake Worth, FL 33463
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