$1,105 of $8,000
24 donations

This fundraiser ended on 03/16/12

Create a fundraiser like this

This is the Miracle For Maddy fund. The funds will be used for Maddys medical costs and related expenses not covered by insurance.

Miracle For Maddy
Madison is a bright and beautiful 8 year old who was born with Infantile Marfan Syndrome. Causes, incidence, and risk factors
Marfan syndrome is caused by defects in a gene called fibrillin-1. Fibrillin-1 plays an important role as the building block for elastic tissue in the body.

The gene defect also causes too much growth of the long bones of the body. This causes the tall height and long arms and legs seen in people with this syndrome. How this overgrowth happens is not well understood.

Other areas of the body that are affected include:

•Lung tissue

•The aorta, the main blood vessel that takes blood from the heart to the body may stretch or become weak (called aortic dilation or aortic aneurysm)

•The eyes, causing cataracts and other problems

•The skin

•Tissue covering the spinal cord

In most cases, Marfan syndrome is inherited, which means it is passed down through families. However, up to 30% of cases have no family history. Such cases are called "sporadic." In sporadic cases, the syndrome is believed to result from a spontaneous new gene defect.

Maddy has under gone numerous tests, hospital visits and in December of 2011 she had a cataract surgery on her right eye.
Due to having Marfan Syndrome and this surgery, Maddy unfortunately had a retinal detachment. Maddy had surgery on February 7th and is recovering wonderfully! She will be enduring several operations to follow to continue correcting her vision along with spinal fusion surgery to correct her severe scoliosis, and for her precious little heart that has been effected by Marfans as well. Maddy will be facing an aortic root replacement and a mitral valve replacement in the near future.
Maddy told her mom & dad "I want to be a doctor when I grow up." Her parents told her that was exciting and asked her "Why are you choosing to be a doctor?" Maddy's answer was: "I want to help the kids like me and let them know that they do not have to cry because I am a good doctor and that God loves them!"
Not only are the medical bills piling up for the Maddy's family, the bills are also and with Maddy's parents not having much income right now with the numerous doctor appointments weekly and surgeries Maddy has had and will have in the near future.
We are asking that you please read Maddy's story and pray for this family as well as donate if you are able. Please forward this to anyone you think may be inspired by this wonderful and bright 8 year old little girl that is fighting for her life! Thank you & God Bless
View more

Supporter activity

Login to post a comment
or Login