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$28,012 of $50,000
56%
264 donations

This fundraiser ended on 11/22/12

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JD's friends & family are uniting to raise funds to help cover the ongoing medical expense not covered by his insurance.

Jose Francisco "JD" Diaz, is the son of our dear friends Jessie & Jose Diaz. When Jessie was 33 weeks pregnant she had to undergo an emergency c-section due to pre eclampsia and JD's low weight. Since the moment JD came into the world on May 31 -weighing 3lbs 5oz - he has been fighting. Jessie & Jose knew they had a long road ahead, as most parents of preemies do. After two long and difficult months in the NICU, Jessie and Jose were eager and excited to take JD home and begin their new life as a family of four. JD was home a couple of days when he was rushed - in the middle of the night - to Miami Children's Hospital (MCH), due to breathing complications. After couple of weeks at MCH, their world shifted and changed into something surreal and unknown. Their son was diagnosed with Cornelia de Lange Syndrome (CDLS). CDLS is a rare genetic disorder caused by a DNA mutation that occurs at the time of conception. Children with this disorder have distinct facial features, a difficult time feeding due to their severe reflux, hearing & visual impairment, congenital heart disease and mild to severe mental retardation. We've created this site as a way to assist Jessie and Jose with the ongoing medical cost and related expenses they are faced with on a daily basis. We are trying to help them get through what is now an ordinary day in his life. Your generous donations will go towards his occupational & oral motor therapy, hospital deductibles and countless other expenses. We know that God chooses strong people to be the loving parents of special angels, like JD. Their journey with JD will be long and difficult at times, but with the support of their family and friends we know they will make it!
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