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This fundraiser ended on 10/01/12

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Please help us to help Isaiah fight for his life by assisting us with both the unexpected and ongoing costs of having a special needs child.

The family of Isaiah Gabriel Ramos are uniting to raise money to help support the ongoing expenses of a special needs child. Please show your support!

In February of 2011, I had gone for a routine ultrasound to find out if my 2nd child was a boy or a girl. Unknowingly, we got news that no parent wants to ever hear about their child, parts of his brain that should have been there by this point were missing. After discovering this, the doctor had sent me to the Children’s Hospital of Philadelphia for further testing. At CHOP, I received a fetal MRI, a fetal Echocardiogram, and a very in depth ultrasound. At the end of a very long day, my fiancé Robert and I received the bad news. We were told that our son has cerebella hypoplasia (suggestive of Dandy Walker Syndrome), Agenesis of the Corpus Callosum, and enlarged ventricles in his brain. We were told that IF he made it full term that he was going to need surgery right away to implant tubes in his brain to drain the excess fluid. We were also told that he would most likely be a still-born. In not so many words, it was suggested to us that it would be in everyone’s best interest to abort my son. We were absolutely mortified to have heard the news, but not once did the thought of abortion enter our minds! We believe things happen for a reason and we were chosen by God to take care of such a special child.

Shortly after Isaiah was born, he began to have breathing issues and seizures. He was immediately brought to the NICU in St. Luke’s Hospital. Isaiah stayed in the NICU at St. Luke’s until July 6th, and he was then transferred to St. Christopher’s Hospital for Children.

The doctors and nurses are amazing at St. Chris! Since he’s been there, he’s been diagnosed with Agenesis of the corpus callosum, Dandy Walker Syndrome, Epilepsy, Optic Nerve hypoplasia, Cerebral Atrophy, Colpocephaly, Cryptorchidism, hypotonia, infantile spasms and Respiratory acidosis. It seems like they just keep adding things to this baby boy’s list of problems. For everything I have named, there is no cure. We will not know how these problems will effect him in the long term until he is older. Every moment with him is a blessing. He has also had surgery to place a "g tube", the doctor's say he should never be able to feed by mouth. We also have another son named Michael who will be 4 in July. Michael (our other son) is absolutely an amazing person. He has so much love for his family and his little brother, and is so eager to help his mommy everyday!

Isaiah is currently in the PICU at Lehigh Valley Hospital.
He has been in and out of hospitals his entire little life, he's just a baby. We have been told that he has pneumonia (again) and campylobacteriosis. If Isaiah keeps getting sick this often, he will most likely need a tracheostomy in the near future. Isaiah is such a strong little boy, exceeding peoples expectations all the time.

As you can imagine, traveling to and from hospitals constantly is taking quite a toll on us, emotionally and financially. Robert works an hourly job, so every day he misses is a day without pay, making it almost impossible for him to spend time with Isaiah. Missing days means backed up bills and most importantly rent and it is important to have a home to come home to! This battle has drained our family both mentally and financially. Isaiah is in the battle of his life right now and the mounting medical bills are the last thing we want to worry about when we are trying to give Isaiah our undivded focus. We can't change this disease or any of Isaiah‘s medical problems, but we can change how we fight it! Thank you all for your donations, support and most importantly prayers. We do believe in miracles and we pray for one each day.

We don't know what the total expenses will be - but we felt we had to get something started to try to alleviate the stress on our family so that we can focus all of our energy and strength on winning this battle! The money donated will be used to pay for medical expenses and to help with daily living expenses while we have to live off of one income.

If you would prefer to mail a check, you may do so in Crystal’s (Mother of Isaiah) name and send to: Crystal Ike, 708 West Pennsylvania Avenue, Pen Argyl, PA 18072
If you have any questions or would like to speak to a family member please feel free to call: Crystal Ike at (407) 286-9629
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