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This fundraiser ended on 06/26/12

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Hope for Huntingtons fund. funds will go to Department of Neurology at University Of South Florida to help in need for HD patients.

On March 2008, I found out I was at risk for a disease called Huntingtons Disease ( HD). A inherited disease that causes certain nerve cells in the brain to waste away. People are born with the defective gene, but symptoms usally dont appear until middle age. Early symptoms of HD may include uncontrolled movements, clumsiness or uncontrolled speech. Later HD can take away the ability to walk, talk or swallow. some can stop recognizing family members.

If one of your parents has Huntington's Disease, you have a 50-50 chance of getting it. More then 15,000 Americans have HD. And at least 150,000 others have a 50 percecent risk of developing the disease and thousands more of thier relatives live with the possibility that they, too, might develop HD.

until recently, scientists understood very little about Huntingtons Disease and could only watch as the disease continuted to pass from generation to generation. Families saw the disease destroy thier loved one's ability to feel, think, and move. In the last serval years, scientist are working with support from the national institue of neurological disorders and stroke (NINDS) they have made serveral breakthroughs in the area of HD research. With these advances our understanding of the the disease continues to improve.

Thier goal is to have a cure in the future, but right now thier working on medication that stops to advance the disease the science is there, but thiers not enough funding because not alot of people are familar with the disease. December 28, 2011, (my birthday) I got tested and found out that I beat the odds and ended my generation of HD. Now instead of dreading another birthday im just lucky to have another birthday to come.
Im trying to raise money for HD paitents so that they can also have birthdays for many years.
Juan Sanchez-Ramos, MD and scientist at University of South Florida is working on medications to stop from advancement from the disease but funds are whats on hold from having a step closer. Funds will go to Department of Neurology at University Of South Florida so that Dr. and scientist Juan Sanchez-Ramos can make this come true.......please help support!
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