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This fundraiser ended on 02/19/12

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This is the Shirlene Syrie Polycythemia Vera fundraiser to get me to the Mayo Clinic for treatment. Funds will be used for medical cost.

I am 64 years old and Have had Polycythemia vera for 2 years. The 2 medications offered locally to treat this blood disorder make you feel worse than the fatigue, discomfort, itching, memory problems and all else that goes with it. I worked as a nurse for 40 years and now it's a struggle to get out of bed. I tried to get in a clinical trial closer to home but none available. I now have a bill for $1300 for that attempt. Quality of life is not great with this blood disorder so you are driven to try anything that will improve your quality of life. You feel like you are pulling yourself around all the time and I was always busy running around. I want to run again. The Mayo clinic has a clinical trial that seems to be working to get you going again. Please help me get there. I have insurance but they require a deposit and I would have to travel from Louisiana. Thanks for any help you can give.
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