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$11,583 of $15,000
77%
171 donations

This fundraiser ended on 10/31/11

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STAND with Sarah is inviting family, friends and generous hearts to help Sarah get the equipment she needs to be healthy and happy!

Sarah Ryan is a spunky, fun loving seven year old girl with a form of Congenital Muscular Dystrophy called POMT2. While Sarah is nonverbal, she is a social butterfly that has no problem letting you know how she feels. She has never been able to crawl or walk but has enjoyed the freedom of a power wheelchair. She’s famous for gentle pats of love on your back and always wanting to mommy any baby in sight!

But most of all, Sarah is a fighter. In 2009 Sarah contracted a virus that shut down her respiratory system. She spent one month in the ICU having to be intubated 2 ½ weeks of that time. Doctors weren’t sure if she would even make it off of assisted breathing devices but by the time we left the hospital she was breathing independently again. Today, she continues to thrive and fight.

Sarah’s most recent battle has been against painful muscle contractures. Sarah has recently completed 10 weeks of serial casting, a process that slowly stretches the joint muscles by casting the joints each week in an increasingly corrected position. She was a trooper through the whole process never losing her spirit. By spending more time standing, Sarah helps to keep her body strong, her digestive system healthy, her body from deforming, and avoids continued painful contractures. She has outgrown her regular stander and needs a Standing Dani, a stander that allows her to be mobile and independent while standing.

Unfortunately, insurance only pays for the stander, not the mobile portion. Just imagine trying to keeping a young child in the same position for over an hour! If she can move, Sarah can join in the fun with her siblings and friends, while getting the standing time she needs. We are estimating that the Standing Dani mobility apparatus will likely be $15,000.

To raise these funds, we are coming together to run or walk a half-marathon or marathon on

Saturday, October 22, 2011 at the DesPlaines River Trail Races.

Consider supporting our efforts by
JOINING IN THE RUN/WALK, VOLUNTEERING AT THE RACE, OR MAKING A DONATION.

We already have a group of 18 great people running or walking on behalf of Sarah!

• BarbDaly
• Doris Dirks
• Mike Koos
• Joe Lepkowski
• Elisabeth “Biz” Lindsay-Ryan
• Rebecca Lindsay-Ryan
• Michele Maeder
• Anne Pezalla
• Kate Pezalla
• Jennifer Ruehl
• Renee Ruffing
• Daniel Ryan
• Martin “T” Ryan
• Mary Smeaton
• Trina Whittaker
Amber Brim
Katherine Polmear
Chloe Gersabeck

If interested in becoming part of our team, please contact STAND with Sarah with any questions.

If you are donating in honor of a specific runner, please note in the beneficiary section.

Another piece of good news, we already have an incredibly generous dollar for dollar contribution to the fund so any money raised will be doubled! We are so thankful you are willing to consider donating on behalf of Sarah.
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