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This fundraiser ended on 08/05/12

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The family of Lillyanna is trying to raise money to off set medically related expenses that the family is incurring .

Lillyanna is a sweet wonderful two year old that has neurobalstoma cancer (intermediate risk), with para-neoplastic Opsoclonus Myoclonus (OMS) Syndrome as well as Neurofibrromatosis/NF1....
Lilly got very sick in April of 2011……But the bottom dropped out of my world when on May 6th 2011 we found out that Lilly had neuroblastoma cancer and the tumor was pressing on her spinal cord. Lilly had her first tumor resection on May 9th 2011 and immediately started chemotherapy…..We also found out she had brain damage from the paraneoplastic Opsoclonus Myoclonus brought on by the cancer. Typically OMS usually comes with a lower risk tumor however Lilly’s tumor was not low risk which we found out from a second opinion that we got from another hospital. We also had to take Lilly to a specialist out of state in Illinois for her OMS in September of 2011.
So in the early fall of 2011 we switched hospitals so that Lilly could get better care--- yes we made the decision to drive our child every three weeks (sometimes more) for treatment that is 357 miles from our home. We knew it would take a huge financial toll on our family but we felt it was necessary to save our daughters life. We found out in February of this year-2012 that Lilly’s tumor had become chemo resistant and that her tumor was growing at such a fast rate that it actually broke the ends of two of her ribs into pieces. Our world was suddenly thrown into panic mode again as the much talked about but risky neuro surgery would have to be done to get the tumor off her spinal cord and to stop any further damage and to remove the two ribs that had been broken into bits.
We are hopeful for Lilly but grounded because this continues to be a long road and the many trips to treatment have cost our family my job (the sole source of income), our home, our savings and our old car finally quit with all the extra mileage that was being put on it. If anyone one can find it in their hearts to help it would be so very appreciated and it would help get our angel Lilly to her treatments so we can have more tomorrows with her. Please remember everyday is a gift not a promise and where there is God all things are possible.

Thank You April
If you have any questions please contact me at Or you donate to my paypal account under or mail to 10399 North US Hwy 129 Branford, Fl 32008.
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