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This fundraiser ended on 08/28/12

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My son Anthony rodriguez his 3 years old with EB......

I am writing to you in honor Of a beautiful butterfly, on august 2008 Anthony Rodríguez was diagnostic with epidermolysis bullosa. From the minute he Came into the word life would be a roller coaster Of emotions. But when i whent to the nice ans saw him it broke my heart he born premature 3,6 pounds he was so little and had missing skin on his hand, he stay in the nicu for 4month those Montt was orible, when he turn to 2month he got sick Dr. Put him on a machine that breath for him hes oxigen sat whent down and Dr. Were giving shots to kip him alive, they ask me to take the machine off that they cant do nothing else and can damage his brain my heart breaks up i was diying. They took the machine off and my dad carry him and 5 minutes later he was breathing again we got so happy god hear me thank you god... They got him discharge on christmas that was my gift i was so exited. I learn words i never hear before. Epidermolysis bullosa, these words forever instilanger and pain in my heart. Anthony live each day with pian and constant itch. At the age Of 3 Dr. Took the Traik out i am so happy he can talk more know. His a happy kid and verry inteligent but when i has to clean his wound and gibe him a bath he cry and cry its so paintfull, hes skin its so fragile that the slightest friction can cause severe blistering that i need to pop it with a needle. Every morning i wake up hoping that Anthony don't get more blisters on his Face from rubbing during his sleep.i don't know what i do with out him his my everything my word and thanks to my parent that they help me to take Care Of him ill been his mother and father for him.. Thank yoy all Of you kissesss from me and Anthony..
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