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This fundraiser ended on 09/17/13

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Raise Money For Brain Tumor To Support Julia Kloiber

Brain Surgery

(In Loving words from Julia’s sister, Angela Justiniano-Ellefson) Julia Kloiber is a loving, fun, beautiful and intelligent woman. Julia just celebrated her 32nd birthday with her loving husband, Joe and their two sons, Joseph Jr. and Joshua. They are both hard working, committed teachers that live in Oshkosh, Wisconsin. Unfortunately, in May of this year my sister, Julia, was diagnosed with a brain tumor. An MRI showed a mass located on the brain near the pituitary gland. This type of tumor is referred to as Craniopharyngiomas; these tumors are near the brain's pituitary gland and most commonly affect infants and children. The tumor is believed to be benign; however, we will not know the details until the biopsy confirms it at the removal of the tumor during surgery. Each year, more than 100,000 Americans are told they have a brain tumor. It is not clear why many of these tumors occur. Those that originate in the brain, primarily brain tumors, may be due to genetic or environmental factors. On May 22, 2012, Julia will undergo brain surgery at St. Luke's Hospital in Milwaukee, Wisconsin, in hopes of removing the tumor. She is looking at a possible 5-8 hour surgery. While her insurance will cover part of the surgery, she is looking at upwards of $40,000.00 in medical bills post operation and well into her recovery. For Julia and Joseph, every aspect of their lives has been totally changed due to this most current hardship: Their health, jobs/income, financing and even their living situation. Still with everything at risk, they know that one thing will always remain constant: The support and love from their families, friends and God. Please unite with us and collectively contribute in her battle. UPDATE: During a long 6+ hour surgery, the surgeon at St. Luke's Medical Center in Milwaukee, WI. was able to remove about 60 percent of the tumor, but was reluctant to try for more since the delicate area where the tumor is located; near her pituitary gland and between her optic nerves. As a result of the surgery, Julia has lost 50% of her vision. She was faced with the grueling decision to either go back in for another surgery, a second attempt to remove the residual tumor or to go in for 6 weeks of radiation therapy to try and remove the tumor. She has chosen the latter and is in the care of the professionals at the Mayo Clinic in Rochester, Minnesota. Her case was presented to a board of surgeons because of the rare type/ nature of the tumor. It has sparked quite a bit of controversy as far as how it should be dealt with, and the final decision was left for Julia to make. She remains hopeful that this will work and with all of the love and support she continues to receive from friends, family and even strangers, that she will be able to recover soon and live the rest of her life to its fullest potential. Again, thanks to all for the support and prayers!!! We feel so blessed!

My family thanks you and we just ask that you continue to rally with us in prayers & thoughts. Any contribution is very much appreciated. God bless!

P.S. Julia’s family would like to give a special “Thank you” to all the family members & friends who have donated in every possible way! Julia continues to struggle with both her physical and financial hardship, though she is staying strong like she always has been! UPDATE: After 6+ weeks of radiation, Julia now has to wait for another 6+ months before her next MRI (in Feb, 201l3) to tell her if the tumor has shrunk or remained the same in size. Regardless, the tumer will not 'go away' as it IS a living tissue. Unfortunately, there were complications during her surgery such as: permanent damage to her pituitary gland, 50% of vision loss, and other medical conditions that even today, doctors can not control, in fact, her vision has worsen and she continues to gain weight and to endure continuous fatigue and periodic head pain.

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The tumor is believed to be approx. 2-3 years old...Just three years prior, Julia visited different doctors regarding her headaches/migranes, and weight gain; unfortunately, tests were taken in reference to her thyroid, but no MRI was requested. If she had just 1-MRI, the tumor would have been detected sooner and time would have allowed the tumor to be removed with minimal damage. We can only pray now for Julia and her future. . Please email Cindy at 'cindylouhooo1@aol.com'' with any questions or concerns, Thank You!

UPDATE:  As of May, 28 2013, Julia continues to struggles with her health. Since her brain surgery back in May of 2012, she has discovered that the initial surgery did NOT go well as expected. We now believe that her optical nerves may have been damaged by mistake. She has 60% of permanent damage...peripheral damage is permanent, double vision is now known to be permanent, and her left eye continues to worsen.  She, without a doubt, needs eye surgery to help better her vision.  And, there's the issue with her petuitary gland, which has permanent damage; therefore, she continues to gain more weight without ANY medication that actually works towards her weight gain, without any advice as to what she can do to help maintain her weight, without any medication that has reduced her weight gain, etc. Julia takes on the avg. of 7 pills daily; however, she continues to gain weight, feel fatique, headaches, tired, drained and has other health issues because of her weight. She's is shy of only 5 ft tall with flat feet...imagine what this weight is doing to her body, health and self-esteem.  She was told not to work, but has no choice in order to support two yourng children. The hospital she attended for surgery has did nothing in assisting her with disability or in any other manner for financial assistance. She pays an avg. of $200 + dollars monthly in medical bills, and they continue to be mailed in, not to mention her future radiation and MRI and other doctor visits and additional medical treatment needed. We will continue to help get medical, finacial and funding attention for her untill she can get her eye surgery and feel better about herself. Thank you for your attention, effection and consideration.As of May, 28 2013, Julia continues to struggles with her health. Since her brain surgery back in May of 2012, she has discovered that the initial surgery did NOT go well as expected. We now believe that her optical nerves may have been damaged by mistake. She has 60% of permanent damage...peripheral damage is permanent, double vision is now known to be permanent, and her left eye continues to worsen.  She, without a doubt, needs eye surgery to help better her vision.  And, there's the issue with her petuitary gland, which has permanent damage; therefore, she continues to gain more weight without ANY medication that actually works towards her weight gain, without any advice as to what she can do to help maintain her weight, without any medication that has reduced her weight gain, etc. Julia takes on the avg. of 7 pills daily; however, she continues to gain weight, feel fatique, headaches, tired, drained and has other health issues because of her weight. She's is shy of only 5 ft tall with flat feet...imagine what this weight is doing to her body, health and self-esteem.  She was told not to work, but has no choice in order to support two yourng children. The hospital she attended for surgery has did nothing in assisting her with disability or in any other manner for financial assistance. She pays an avg. of $200 + dollars monthly in medical bills, and they continue to be mailed in, not to mention her future radiation and MRI and other doctor visits and additional medical treatment needed. We will continue to help get medical, finacial and funding attention for her untill she can get her eye surgery and feel better about herself. Thank you for your attention, effection and consideration.

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