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This fundraiser ended on 05/25/12

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Chance is strong enough to fight this every day we have to be strong enough to help in what ever way we can!

First I want to thank you for taking the time to read this!
Our Son Chance Has Mito
He will be 9 in July. Which may not seem like much but when your told will not see the age of 3 nine is HUGE! He had a stroke in utero (before he was born) He has a tremor in his hands .He also has a CPAP for sleep apnea. He has complex partial seizures. He takes meds 3 times a day for neuorpathy in his hands and feet. Total of 18 pills a day just to maintain daily living .He is developmentaly delayed .We then found out he would have athitiod CP. The latest in his health care was that he is autistic . The (UMDF) United Mitochondrial Disease Foundation is working hard to educate about this disease. We have 2 daughters (alica 14 & destiny 11).We go to the children’s hospital.

Chance is so strong and smart. He is so full of life .He love’s star wars.
My family wants to teach others about mito .We want to know about the latest treatments .We have done a pop can drive to help offset the cost. My daughters have the chance to talk to the senate about funding for research for the UMDF. We can’t fight this without the help of research.


We need to raise money for lodging and food and parts of the symposium.

Mitochondrial Medicine 2012: Capitol Hill
Capitol Hill UMDF Advocacy Day: June 14, 2012
Scientific Sessions: June 13-16, 2012
Family Sessions: June 15-16, 2012
Bethesda North Marriott Hotel & Conference Center
5701 Marinelli Road, Bethesda, MD 20851

Each year, the United Mitochondrial Disease Foundation brings together clinical and basic science researchers sharing an interest in mitochondria from all over the world. Participants come from many fields, including biochemistry, genetics, neurosciences, cardiology, cancer, diabetes, nephrology, hematology, pediatrics and aging research.
During the symposium, patients and families meet others who, like themselves, are seeking knowledge. They may be parents or an individual with similar experiences or someone that lives close to them. Patient and family attendees are given many opportunities to meet some of the top mitochondrial specialists from around the world.
The symposium encourages the exchange of information and cultivates networking among physicians, researchers, patients and families. We will have a four-day scientific/clinical program and a two-day patient/family program.
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