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This fundraiser ended on 08/30/10

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Sammy is a 15 year old with multiple disabilities. He was hospitalized on 7/2/10 due to sudden inability to walk. His parents continue to miss a great deal of work due to his illness. This fundraiser is to help the family of 8 in this trying time.

Hello,  this fundraiser is to help a 15 year old boy who was born with multiple medical problems and his family.  He was born with Lobar Holoprosencephaly, Diabetes Insipidus, Adrenalcortical Insufficiency, Cerebral Palsy and Seizure Disorder.  He lives with his parents and 5 siblings.  On July 2 Sammy was admitted to Children's Hospital of Pittsburgh with sudden inability to walk.  He was very weak and had severe pain in his legs.  He was admitted to the PICU and had many tests done.  He was eventually diagnosed with Myositis and Acute polyneuropathy. It is believed that he contracted a virus that attacked his nerves and muscles.  He remained at CHOP for two weeks.  He then transferred to The Children's Institue for several days for rehabilitation.  His father stayed with him the entire hospitalization and was unable to work.  His mother traveled four hours everyday to visit him so that she could be home with the other children every night. Sammy is home now but needs constant care and must be taken to physical therapy three times a week.  I am Sammy's sister and I am doing this fundraiser on behalf of Sammy and my parents.  My parents have both missed a great deal of work and have found it very difficult to make ends meet over the last 16 years and especially at this time.   My mom is staying home to care for Sammy and my dad has to miss work at times to help take him to physical therapy.  The money raised will be used to help with everyday living expenses.  Our home is very small and it is difficult for Sammy to get around in using his walker and in his wheelchair.  We only have one exit which leads to many steep steps down to the car.  If enough funds are raised we would like to possibly extend our porch and put another door in so that there is another way out of our house in case of an emergency.  We would also like to install a ramp to make it easier to get Sammy in and out of the house.  My parents have applied to agencies for assistance for the past 10 years but are always told that because they both work they are not eligible for any special programs or financial assistance.  Any donations to my fundraiser for Sammy would be so greatly appreciated.  Thank you for taking the time to read our family story.

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