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Please help Tierra get to her new Neurosurgeon in Springfield IL

I was diagnosed with Idiopathic Intracranial Hypertension a year ago. My body thinks and acts as if I have a brain tumor, for an unknown reason. IIH has no known cause and currently no cure. IIH causes debilitating head pain due to the increased pressure inside the skull. It also puts pressure on the optic nerves and causes visual disturbances and potentially blindness if left untreated. It also causes a long list of other symptoms including but not limited to pulsating tinnitus (pressure and "whooshing" in the ears), dizziness, nausea and vomiting, insomnia, memory loss, mood swings and the list goes on and on.  It can even cause death regardless of treatment. Therapeutic spinal taps are often used to relieve the pressure, but the effects are temporary at best, and come with a long list of risks. There are few medications that can help decrease the build up of cerebral spinal fluid in the skull but I did not respond to them. A "last resort" option for IIH patients is to have a shunt placed. I had a VP shunt placed back in April of this year. It is a tube that goes from a ventricle in my brain, and it carries the fluid down into my abdominal cavity where the excess fluid is absorbed. Even shunting doesn't always fix the problem. While the shunt did save my vision, we are afraid it is malfunctioning, as I'm in daily pain once again, and having the same symptoms as before my surgery. My husband and I live in Southern Illinois and healthcare is very limited in our area. We had to make a 2 hour drive to St Louis every time I had a doctor's appointment and that's where my surgery was done. We have exhausted all of our options and resources including emptying our savings in order to pay for travel and accommodations and the doctors here are playing ping pong with me and I've even contacted the manufacturer of my shunt and they agree it needs to be replaced and doctors won't listen. The neurologists tell me I need to see a neurosurgeon. The neurosurgeons tell me they can't help me and I need to see a neurologist. As you can imagine this is all quite frustrating, all while being in terrible amounts of pain. We are looking for a second opinion and we did get an appointment scheduled with a very highly talked about neurosurgeon in Springfield, IL.  Springfield is a 4 hour drive one way, and being on disability makes getting there even more difficult.  My initial appointment is November 24th and after that I expect surgery will be scheduled and then we'll go from there.  I anticipate multiple visits to Springfield and lodging may be required if I am admitted for an extended period of time.  I am asking all of you to find it in your hearts to at least share this, if you are unable to donate.  I can assure you no donation, no matter how big or small, will go unnoticed.  Every single one of you would have a part in helping me get my life back.  There is absolutely no pressure whatsoever, but again I am thinking I am looking at my second brain surgery this year but I will do anything at this point to get my life back.  I know God will provide, and God bless you all who took the time to read this.  Best wishes to all of you.

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