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This fundraiser ended on 03/15/12

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WE WANT TO SEE OUR CHILDREN AND FAMILIES MEMBERS WALK, RUN AND DANCE! PLEASE DONATE TO HELP US CONTINUE TREATMENTS TO BEAT SPINA BIFIDA!

We are a very dedicated group of familes who desire to see our children and family members beat Spina Bifida and we know this can happen only with God's help. There is no known cure for it, but we have explored new treatments and therapies and some of us have traveled far to have these and worked hard to raise money which is so time consuming while having children. We have seen amazing results from some of the treatments, which include umbilical chord derived stemcell treatments which are non-embryonic, in China and Mexico. Spina Bifida is when the spinal chord is basically sticking out at birth which can vary in different children and needs to be repaired. There are varying amounts of damage that is done which include nerve damage to everywhere below that point, paralyzation, fluid buildup in the brain (hydrocephalus), bladder and bowel issues which require children to be cathed and chiari malformation. Our children have gained sensation, better function of the bladder, strength and endurance from these therapies and treatments. There is also a large variety of therapy equipment which we could be using that are not available at our local therapist and we cannot afford and even if it were, we cannot spend all of our time traveling to therapy but need this at home. Alot of therapy and equipment also is not approved because it is considered experimental or insurance just won't cover it. Some of us also have had doctors refuse to write prescriptions for leg braces because they said our children wouldn't walk or crawl. When we went over their heads or other families donated, we proved that they would walk and crawl..they walk with ankle braces and a walker and crawl! This is very discouraging to be fighting doctors who constantly say they "can't" when they can and is a perfect example of how some people try to "play God.". Please please help us see this through. We believe that if you ask, you shall receive..just as the Bible says...and we are depending on God completely. We understand this may not be for everyone, but we believe we have been led in this direction and met from the same circumstances. Whether people agree with us or not about our belief in God does not matter, but if you would like to see Spina Bifida be taken down..please help. Knowledge is power and when lots of people come together to make a difference anything can happen. It was for this very reason that God confused our languages at the Tower of Babel. Because He himself said "nothing will be impossible for them," but healing is God. He desires healing in us. Sometimes we don't understand it..but it is possible. Help our babies walk, run and dance!!!!!!
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