Top
$0 of $4,000
0%
0 donations

This fundraiser ended on 11/15/12

Create a fundraiser like this

Please help us raise money for our sons' headstone, and maybe we can reunite again to fight for this disease! Thank you and God Bless!

On August 10, 2011, my husband and I had lost our son Jaxon with his battle with SCIDS and HLH. It's a rare genetic disorder, in which our little guy battled as long as he could. We lost him at 6 months of age.
He was hospitalized at the Riley Childrens Hospital in Indianapolis, IN. Everyday he was going through different screenings, blood testings, monitors, and we were looking for a Bone Marrow Match for his only need for survival. Towards the end of his journey, he had battled chemotherapy until he finally had to be put on life support.
We have a Facebook page for our little guy, "Prayers For Baby Jaxon" , and we more than welcome you to please visit it. There are before and during pictures as well as statuses of Jaxon.
We hope we are able to raise enough money for his headstone because we simple cannot afford the expenses.
If we can succeed in doing so, we would also like to find a way to to start an awareness about this disease and try to make it mandatory in the states for newborns to be screened for this, hoping it will help instead of finding out it is too late and not have to face a situation like we have with Jaxon because no parent should lose a child.
View more

Supporter activity

Login to post a comment
or Login