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This fundraiser ended on 01/01/13

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Quinn is a 14 year old girl who has been debilitated by a condition called Ehlers-Danlos Syndrome, a tethered spinal cord, and a chiari.

Quinn is a 14 year old girl who has been debilitated by a genetic condition called Ehlers-Danlos Syndrome (a connective tissue disorder), which lead to her having a tethered spinal cord, severe scoliosis, and a chiari malformation in the brain. She is in need of surgery to untether her spinal cord, and then decompression surgery to relieve the pressure in her brain. She spends every day with severe pain, back spasms, muscle cramping, and is unable to stand upright. She has lost her hearing in her left ear, lost the ability to read as her vision is blurry, has frequent seizures, insomnia due to the pain. There are very few neurosurgeons who understand the connection between the EDS and the tethered cord/chiari malformation in the US, but we have found a great one. Unfortunately, she has been denied for her surgery because the neurosurgeon is out of state. Her father has a new job with benefits that kick in Jan. 1, 2013. Unfortunately, the doctor is still out-of-network, and there is a $20,000 deductible that must be met. On top if that, there are fees every where for Paypal, etc... for the donations.
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