Top
$0 of $100,000
0%
0 donations

This fundraiser ended on 12/31/11

Create a fundraiser like this

My baby nephew Cole was recently diagnosed with a rare autoimmune disease called OMS,and I need your help to raise money to help his battle!

Hello,

I am reaching out to you for help. My baby nephew Cole was recently diagnosed with a rare autoimmune disease called Opsoclonus Myoclonus Syndrome. It's a devastating and truly unknown disease that has torn our hopes and dreams apart. It started with a tumor on his kidney(Neuroblastoma) and has progressed into an autoimmune disease, where his own white blood cells are attacking his brain. There is one hospital that specializes in it in Illinois. We were told part of his vigorous treatment will be ACTH injections. This is where we need YOUR help. If the insurance does not cover it, it will be $25,000 for each vial (That's aproximately $300,000/year). They estimate him to need at least a year's worth. This disease has effected several little angels and now my nephew is one of them. I was hoping to ask for donation and help in spreading the word about this disease, because it truly goes undiagnosed FOR SO LONG. Several patients come in to the hospital and are misdiagnosed as having a viral infection, and precious days are then wasted away. I ask for your help.

Please help our little angel and help raise awareness.

Rania Khoury
View more

Supporter activity

Login to post a comment
or Login