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This fundraiser ended on 10/09/12

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This is the nevaeh fund. the funds will be used to build her, her own sensory room full of bubble tubes fiberoptic cellings lava lamps etc

On August 4th 2011 I gave birth to a beautiful healthy full term little girl named Nevaeh at 3 days old she began having seizures all test come back normal she has been in and out of presbyterain in charlotte nc and has also been at duke university and unc chapel hill university having over 100 seizures a day at 5 months old she was diagnosed with migrating partial epilepsy in infancy a rare epilepsy only 100 kids in the world have it and most die by the age of 3... but i have faith in my little girl she is now 10 months and still has not learned how to make any noise besides crying shes just now trying to hold her head up and trying to roll. she also has cortical visual impairment due to most of her seiures are in the back of the brain where your eyes send the images it can be corrected with alot of work mostly with specail toys like bubble tubes and lighted sensory toys which are very costly. I am trying to raise money to build her the best in home sensory room i can possibly give her she deserves it lights and vibrations soothes her . I started a donation on everibbons for funneral cost earlier this yr because the doctors told me she nost likley wasnt going to make it and all i could and still do think about is what if she does pass away so young how are we going to give our baby a proper burrial? I check on that donation page all the time but nothing so far... but shes doing so much better and like i said at the beginning I along with our family and friends and my other 2 children we all have faith in her, this fundraiser is for her to a specail room just for her she may not be able to do much but that doesnt mean we are supposed to never buy things that she enjoysjust because they cost so much. thank you so much for taking the time to read this. she has a website it is http://lilmissnevaeh.webs.com/
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