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This fundraiser ended on 03/15/13

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Kylie and Lennox-Gastaut

Kylie was born a normal child, had a normal newborn screening up until she was the age of 5 months. My mom started noticing Kylie doing these jerks. I as her mother thought that it was normal and just something she would do. I took her to the doctor to ask what could be causing this and her doctor had no clue. She then referred us to children's hospital to get more test done. We went in they had a group of doctors come in and as soon as they seen her they told us she had Infantile Spasms which is a seizure disorder. She would have hundreds of seizures a day and they would come in clusters. Then one day she had a seizure in the tub and wouldn't respond to us at all. So I rushed her to the er and they took about an hour and half to get her stable, then they sent her to children's by ambulance. Thats when Children's told us that her seizures had progressed to Lennox-Gastaut Syndrome. This type of seizure disorder is where you can have any type if seizure. Anyways to get on about why I'm here asking for help... Kylie is now 3 1/2 and is extremely delayed developmentally wise. She is non verbal and it's very hard for us all to know her wants and needs. She mainly cries all the time bc she can't tell us what's wrong and we don't know either. We just go through steps to see if we can figure it out. She needs a communication device that will speak for her and we are hoping to raise enough money to buy an iPad for her along with the speaking app. If you all could come together to help this precious child we would be so grateful. Thanks to you all and god bless!
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