$890 of $5,000
10 donations

This fundraiser ended on 12/01/11

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Olivia has type 1 SMA. We are trying to raise funds to help cover medical cost and related expenses not covered by insurance.

Olivia Hemmeain was born on June 30, 2011 a beautiful healthly little girl. She has been the pride and joy of her parents life.

Olivia was recently diagnosed with type I Spinal Muscular Atrophy. Spinal Muscular Atrophy (SMA) is a rare, genetic, inherited disease that results in the loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. The muscles most frequently affected are those of the neck and trunk that control posture, those of the leg and arm that control movement and the respiratory muscles which control breathing.
SMA is the number one genetic killer of children under two years of age, yet very few people have heard of the disease; 1 in 30 people carry the defective gene.
People with SMA generally appear normal at birth; the symptoms develop as early as three months in the most severely affected (Type I), around one to two years of age in the less progressively affected (Type II) and more rarely in late childhood or adult years (Type III and IV) in mildly affected individuals.
There is no known cure for SMA; historically, nearly half of those born with Type I SMA die before the age of two. Children with Type II generally die before adulthood. All people with SMA have a higher than normal risk of progressive disability and premature death.

Olivia has the worst form of Spinal Muscular Atrophy.
We are asking for donations to help with her medical expenses and to help her parents be able to spend as much time with her as possible.

If you have any questions please feel free to contact me.

Thank you for all your help and support.
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