$11,958 of $15,000
112 donations

Darien was born with Amniotic Banding Syndrome which left him blind in left eye, amputated fingers, cleft lip/palate & other eye conditions.

Darien is ten years old (please click on his photo to see additional pictures and videos). He loves reading, music, always smiling & clapping about everything!  He is homeschooled at home with his sister.

He has received 5 surgeries, when he was younger. We had great insurance then, but it still didn't cover several cost, because insurance said several things was 'plastic surgery'. Was a long battle with them. Thankfully, due to fundraisers, we were able to cover the difference, and travel expenses.

Darien is now due for more surgeries. This year he has already had 3 surgeries.  He hasn't had insurance coverage for 2 years now, due to income changes  and insurance costing more than we are able to pay for him. We have exhausted every angle possible for insurance, which includes all government options.  Shriners did perform Darien's Cleft Palate repair this year, and we are so thankful.  His eyes lids were one of the surgeries this year, and the doctor did not require payment for it either.  Thanks to donations, we were able to pay for the hospital expense.  Darien needs extensive dental work that insurance will not cover.  He will still need several face and bone reconstuctive surgeries too.   Travel expenses to different doctors near and far would be a more than helpful.  Please, know that no amount is too small for us.  We are honored and thankful for every dollar.

Things the money will be used for:

  • Glasses and exams (specialty fitted frames due to his ears being off balanced and the width of his nose, lenses, transitions, and exam) Approx. $500 total.  (this has now been provided, thanks to Menard Eye Clinc)
  • Travel Expenses to and from Doctors (Washington, DC, Shriners in Shreveport, LA and Orlando, FL).  Mainly gas, hotels and food.  Cost will vary. 
  • Additional Medical expenses (this will depend on if we are able to afford his insurance- it is extremely high).  If we are unable to, our goal will increase as cost estimates come in.  Face and bone reconstruction will be several surgeries.  Hand surgery/separating fingers, as well.  Extensive Dental will occur too.  He will need jaw sugery, and bone surgery in his skull to fill 2 soft spots.  Cost will vary. 

Hopefully, this gives everyone a better idea of what is needed for him.  I will change this as time goes on.
It pains us as Darien's parents to feel helpless! God has been our constant source of hope and strength.
Anything you can do to help us out, would be both a blessing and answered prayer. Thank you!

*Be sure to Follow us on Instagram @  with  #dariensfund...thanks!!



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