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This fundraiser ended on 09/30/12

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To help raise money for our Boston medical trips.

Trying to raise money for our travels back and forth to Boston's Children's Hospital. Sairah is receiving care from their Cardiac & Pulmonology teams. Traveling to another state is always costly. We are trying to raise money for transportation to and from Boston, housing, food, etc.
Sairah's journey to Boston Children's Hospital

Sairah Grace a CHD survivor is our daughter. She was born with a a congenital heart defect called "Transposition of the Great Arteries, Atrial Septic Defect & Pulmonary Stenosis". She has had 2 major open heart sugereis and 4 minor ones (heart caths), she has also had 3 spine surgeries. In the few months, Sairah has had alot of breathing issues and we havve gone to her Cardiologist and a Pulmonologist. She was put on oxygen as needed. Well lately things have gotten worse and the Pulmonologist said her heart is shunting and her oxygen levels are dropping more so they put her on oxygen full-time. We have been talking to specialist up at Boston Children's Hospital in Boston,MA. and we are going up there next week to get a new outlook on her condition and get a 2nd pair of eyes. The cardiologist is even calling in a Ortho Dr. as well as a RA dr. along with heart & lung Dr. WIth all this in mind, we will be away from our family. We will have to stay somewhere close to the hospital. There is a place thats like the Ronald McDonald house, if they have availability, there is still a daily cost. If there is no room available we will have to stay in a regular hotel. They said that they might admit Sairah, so if they do that, then she is taken care of, but I will still need place to stay. We will also have the cost of air fare, taxi to and from air port, cost of food, etc. Sairah Grace has done many concerts on her own for other people's causes and has done many concerts for other organizations. Now Sairah and her family are asking for your help for us. If you can help with our family with this venture, you can send your donation through this web-site.
Update from our 1st Boston trip: We have to go back to Boston in a month or so to have another heart cath surgery. They said her pressures are high on the right side of her heart and she has narrowing in her LPA. They also found out that her Diaphragm is partically paralized, a vacular ring around her esophagus, acid refluxes. They took her from full time oxygen to only as needed because her stats were good. We will be going back to Boston for the heart cath and then we have a few other doctors to go to as well to discuss the new findings. Please keep Sairah and our family in your thoughts and prayers. Thank you for you love , prayers & support.
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