Friends for Haleys surgery urge anyone that is able to help, to please do what you can. Anything, no matter how small would be appreciated.
Haley was born very premature (25 weeks gestation...1lb 6oz), and required ventilator assistance for four months. After several attempts to remove her from the ventilator, the Drs discovered that she had severe scarring in her trachea. She had a trach put in at 4 months of age. She spent 7 months in the hospital as a newborn. In 1999 she was referred to Childrens Hospital in Chicago because her airway issues are so severe that no other Dr had the expertise to treat her. After several tracheal reconstructions with a world renown Physician in Chicago, 700+ miles from home, she had her trach removed at age 4. and two more revisions, one in 2001 and another in 2002. She has also had several follow up surgeries where scarring was lasered from her airay. Unfortunately, her airway is not growing and the hole from her stoma will not close ,due to this severe scarring. These airway restrictions are causing her not to grow at a NORMAL rate as compares to her peers. She has needed to return to Chicago for additional surgery for a couple of years but her parents have not been able to afford the trip due to several lay-offs.They have just found out that her current insurance will only cover half the costs and none of their travel expenses due to the hospital being outside their coverage area. The first trip is scheduled fo July 17 in Chicago, the second surgery is scheduled for Sept 19th 2012, at which time she will have a vocal chord revision and upper airway reconstruction, and will be hospitalized for 7-10 days. The final surgery will be scheduled for Jan 2013 at which time she will have an airway reconstruction about an inch 1/2 below her vocal chords and a 7-10 day hospital stay after that surgery also.... so time is of the essence. Haley has been travelling back and forth to Chicago since she was a baby. She doesnt get to do sports or swim, or alot of the fun things other kids take for granted. Her greatest wish is to go swimming next summer. Please help us give this young girl her life back...Please help if you can....Thank-You.
Haley had a little setback on Thursday night. The area around her incision became very swollen …
Haley went to surgery again today. Dr H said everything looks great so far. She is no longer on…
haley had a very long day yesterday..7-1/2 hrs in surgery. she is in the ICU and resting comfor…