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This fundraiser ended on 07/02/12

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The Family and Friends of Daniel are uniting to raise money to help educate his mom and relive anxiety about his differences.

The short version : This is an amazing opportunity for Daniel and I to learn and meet the forerunners in 22Q deletion and for Daniel to see he is not different. WE have almost all the funding necessary. Please help as much or as little as you feel led. We appreciate anything you can give.

Long Version:
Although the International 22q11.2 Deletion Syndrome Meeting was initially convened in Strasbourg, France in 1998 to assemble the best professional minds working on this diagnosis worldwide, families have always been an intentional and integral component of the meeting as leaders from a variety of parent groups have been in attendance at all gatherings, whereas a large contingent of families participated in the Philadelphia, Atlanta, and most recently Coventry, conferences. The 2012 Meeting is modeled after the latter three conferences, with an entire family program incorporated specifically into the meeting. The heart of the Family Program revolves around core lectures presented by world renowned clinicians and scientists focusing on the medical, developmental, educational, and psychological issues associated with the 22q11.2 deletion syndrome. Expanded question and answer periods provide essential opportunities for parent-professional dialogue. Furthermore, an integrated Social Program encourages a robust Parent-Professional Partnership. Last but certainly not least, programs designed specifically for individuals with the 22q11.2 deletion of all ages, as well as siblings without the deletion, make the 2012 Meeting, with its incredible location at the Disney Yacht and Beach Club Resort, particularly unique.
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