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$280 of $1,200
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8 donations

This fundraiser ended on 07/10/12

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Lulu has Russell Silver Syndrome a form of primordial dwarfism. We are raising money to send her to the 2012 MAGIC Foundation Convention.

Lulu is five years old and about to enter kindergarten. After years of searching for answers, Lulu was diagnosed with Russell Silver Syndrome (RSS), a rare form of primordial dwarfism. It has been a battle for her family to get her necessary treatments and testing and she still has a long way to go.
We are raising money to send Lulu to the MAGIC Foundation Education Convention in Chicago, Illinois on July 19th – 22nd. This is a HUGE event and only happens once per year, it is a place where small is normal! Lulu will get the chance to meet children just like her and it will give her family an opportunity to get more information from specialists and other parents. At the convention Lulu will be seen by the best Doctors and specialists who deal with RSS, including a free consultation with Dr. H from New York who is the top national specialist of RSS.

We have already paid the registration fees, activity fees and hotel, but still need help with airfare costs. We figure it will be about $1200 for the airfare depending how soon we raise the money.

All donations are appreciated and donations received over the cost of the airfare will go towards Lulu's medical treatments. Thank you.
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