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This fundraiser ended on 12/05/12

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The family of Hailey Marie Bosarge are coming together to raise money for Hailey's service dog because she has Dravet syndrome.

On May 3, 2011 CJ and I were blessed with a beautiful healthy baby girl, Hailey Marie Bosarge. She weighed 6 lbs. 4 oz. and was 18 inches long. She was everything and more that we dreamed of having. She has changed our lives forever for the best. Things were going great until she was 4 1/2 months old, when she had her first seizure. Doctores thought it was just from a fever until it happened again a month later and than started getting closer by weeks and than days. We wanted to know what was going on with our baby. We went to different doctors and seen a few neurologiest until one of them really got to looking at her and knew before blood tests were back that she had Dravet syndrome. I looked it up after an appoinment one day and we couldn't help but cry. I never heard of this thing and its because its so rare. On June 19, 2012 she was officaily diagnosed with Dravet finally after 9 months of dealing with the seizures we finally know what it is. We wanted to help Hailey out as much as possible and we knew we couldn't just take away her condition. I knew about service dogs for a long time from a family member who had one for seizures. So i started looking at places, but none of them would provide one for her since she was only a year old. Finally from a support group member she told me about a place she got her child one who doesn't refuse a person just because of their age. So I applied and not even a day later I got a call from them and they approved her! So now we are in the process of raising money for the price of the dog and than its training and vet bills.

We want our little girl to have as much freedom as anyone else out there and also be more relaxed at night while she sleeps because we think she has apneas since she wakes up screaming and crying. She does have 3 different types of seizures the jerking type, apneas and starring so as you can imagian its hard to tell when shes ok or not.

Please help Hailey get her service dog/best friend forever as soon as possible.

Also...October 27 we will have a benefit for Hailey. It's in Sweeny Backyard park at noon- whenever. BBq plates, silent auction, bake sale, and some homemade things like candles, bracelets, and keychains.

 

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