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$6,755 of $25,000
27%
40 donations

This fundraiser ended on 12/15/11

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The family and friends of Kaden are uniting to raise money to help with his battle for life. Please show your support!

Kaden is a charmingly wonderful 14 year old boy who has spent the last 14 days on life support in the Intensive Care Unit at Children's Medical Center. Kaden and his family are surrounded by wonderful people who support and love them. I am Kaden's "Aunt Noodle" and I wanted to create a convenient way to keep everyone informed on his progress as it changes daily.

Kaden has had quite a struggle in the ICU and his fight is nowhere near over. He became very ill within a 24 hour period and developed septic shock of unknown origin. He went into hypovolemic shock and was rushed via www.careflite.org to Children’s Medical Center on Saturday, October 15th. He had a great team of people doing everything they could do to keep him alive. It took 20 minutes to transfer him from the Lewisville Emergency Department. Amy was an EMT on his transport team and she said it was the longest 20 minutes of her life because she almost lost him. She comes by the ICU to check on him every chance she gets. She got to talk to him before they put him under and told us what a sweetheart he was through such a scary situation.

When Kaden arrived at the ICU, he had total organ failure and was unstable. Kaden's family was told that there was a very high mortality rate for the condition he had. The staff at Children’s took great care of him and got his little body to stabilize. He has been on a countless amount of medications and is on a ventilator to help his lungs breath for him. He developed pneumonia while in the hospital and needed chest tubes to drain the fluid. He is quite strong and really a fighter because he has already healed most of his organs and is slowly being weaned off the ventilator. His doctors attribute his speedy recovery to his good health and the fact that he is a great athlete. He was taken off the paralyzers recently which means he is awake and aware of his surroundings but is still on the ventilator. This would be anyone’s worst nightmare! He has handled his situation with such bravery! He started wiggling his fingers and toes and even nods his head yes and no when we ask him questions.

Now here is where everything gets interesting. . . .

Why did he get so sick? This is the question everyone is asking and we finally have an answer. Kaden has been diagnosed with a genetic disorder in which his body lacks the ability to produce antibodies. Antibodies are important in the recovery from infections and also protect against getting certain infections more than once. He has Bruton's Agammaglobulinemia.

At this time, there is no way to cure patients who have Bruton’s Agammaglobulinemia (XLA). The defective gene cannot be repaired or replaced. However, patients with XLA can be given some of the antibodies that they are lacking. The antibodies are supplied in the form of immunoglobulins and can be given directly into the blood stream (intravenously) or under the skin (subcutaneously) every 3-4 weeks for the rest of his life.

So what does all of this mean?

HE HAS A LONG HAPPY HEALTHY LIFE AHEAD OF HIM!!!

Patients who receive immunoglobulin on a regular basis are able to lead normal lives. They do not need to be isolated or limited in their activities. Active participation in team sports should be encouraged. Children with XLA can participate in all regular school and extracurricular activities, and when they become adults can have productive careers and families. A full active lifestyle is to be encouraged and expected. There have even been many advances in gene therapy, which could potentially cure XLA!

Kaden’s mom Leslie has been with him every minute and hasn’t left the hospital one time. She is self employed and not able to work due to Kaden’s condition. Kaden will require weeks of rehabilitation once he gets out of the hospital not to mention that he will require monthly injections of antibodies for the rest of his life. Their private insurance plan is very expensive and covers very little and I know for a fact that the medical bills to this point have already exceeded one million dollars! This situation has the potential to drain their family both mentally and financially. Kaden is in the battle of his life right now and the mounting medical bills are a worry we would like to take away from his family.

Kaden's mom is my sister and we all know she is a very private person and never asks anyone for help. When I was at the ICU, Kaden and his family had an outpouring show of support, love and prayers from friends and family. Everyone wanted to know what they could do to help. Leslie is so overwhelmed right now and I heard her comment that she doesn't even know what kind of help she needs. She is solely focused on Kaden right now and getting him better. As an outsider looking in, I wanted to help people to help her and Kaden so I made this website for them. I wanted to have a way for people to get updates on Kaden and show their support in an organized community of love. Under no circumstances would she be comfortable letting me do something like this and I'm pretty sure I'm going to be in big big trouble but I don't care. She needs this help and it makes us (their friends and family) happy to be able to help!

Thank you all for your donations, support and most importantly prayers. We do believe in miracles and we pray for one each day.

If you would prefer to mail a check, you may do so in Leslie's name and send to: Nicole Johnston, 2310 Immokalee Rd, Naples, FL 34110.

If you have any questions or would like to speak to a family representative please feel free to call: Nicole Johnston at 239-596-2225 or email drnicolejohnston@yahoo. com.
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