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This fundraiser ended on 12/07/10

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Saige Voinis was born October 6th, 2008. At three months we discovered she has Cerebral Palsy. This was a blow to our family, however we are doing everything in our power to make life as normal as possible for her.

Saige is a 19 month old identical twin who was born “healthy”. At a little more than 3 months, we realized something was wrong so, we took her to the hospital. She stayed overnight for what we thought were stomach issues. It wasn’t until the next morning we were given the news that our sweet girl wasn’t “perfect”. She was having GI problems because she had suffered a brain injury. In short, she had/has cerebral palsy. We were told that we would just have a “special baby”. We were told that she would never walk, talk, hear, or see. It was a devastatingly dismal prognosis.
Some months later, we found out that there is some hope. There were therapies out there that are often referred to as “alternative”. These therapies are proven methods that offer hope for better lives for children with Cerebral Palsy. However, private insurance won’t pay for them. Some of the methods of treatment we are seeking for Saige are: HBOT, Masgutova’s Camp, Stem Therapy, and treatment at the Institutes for the Achievement for Human Potential.
Although they have good success rates, these methods are not approved by insurance companies. With these therapies we are hopeful that Saige will be able to walk, talk, and even eat on her own orally. In addition, we are hopeful that they will alleviate her seizures. We desperately want to explore these treatments for our baby girl.
I want Saige to have the opportunities everyone else has in life. When I consider Saige and her healthy twin Demi, I can see how precious life is and I realize how many things I take for granted in my own life… like the simple ability to eat, walk, talk and to interact with other. Please search your heart. Anything you might be able to send would be a blessing!
 

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