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This fundraiser ended on 10/31/11

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Josie was born with a rare liver disease. Her whole life she has defied the odds and done well, but doctors now say she needs a new liver.

Update 9/1/2011: Josie was release to Ronald McDonald House today. We were trained to administer her antibiotics through the pick line as well as draining & flushing the bile drainage bags. Update 8/31/2011: Josie had surgery to put a stent in through her liver with the intent to let the hole in her drainage duct heal so the bile will stop leaking. She now has two bile drainage tubes with bags hanging from her body, one from the 8/19 surgery & one from today. Update 8/22/2011: Josie had a pick line installed to administer antibiotics to combat an infection that was caused by the bile leak in her liver. She continues to have an amazing attitude & smile constantly. Update 8/19/2011: Josie had surgery to put a drainage tube in a separate fluid pocket which was caused by a bile leak from her liver. Update 8/17/2011: Josie had surgery to drain the fluid pocket. They will perform tests to determine the cause. Update 8/16/2011: Josie had a biopsy on her liver. The results showed that her liver is NOT being rejected. She has fluid pockets that they are not sure the cause of. Update 8/15/2011: Josie is back in the hospital. Doctor's think there are signs that her liver is being rejected. Update 8/12/2011, 5:39 AM: Josie is walking & recovering great. She has been getting more jaundiced (yellow) the last couple days, which is mildly concerning. She is scheduled to be released today to the Ronald McDonald house next to the hospital to continue her care. Update 8/09/2011, 7:24 PM: Today was another good day for Josie. They removed her catheder & she has been more mobile & sitting up for long periods. As always, she has a smile that never leaves her face. Update 8/08/2011, 8:35 PM: Today was a good day for Josie, she walked from her bed to a chair across her room & sat up for over an hour. Tomorrow she should be moved out of ICU to a regular room. Update 8/07/2011, 2:53 PM: They removed the breathing tube from her throat around 12:30 AM & a drainage tube from her nose around 11 AM. Jo is much happier & constantly smiling. It is nice to hear her sweet voice again! They also let her take a sip of water for the first time in 5 days! Update 8/06/2011, 1:01 PM: They just took Josie so they can sew up her stomach because her swelling has gone down. If everything goes well, they will remove the breathing tube a couple hours after that. Jo is very excited about the possibility of having the breathing tube removed. Update 8/05/2011, 10:36 AM: Josie's new liver is starting to function properly. She is awake more often & is trying to talk, but she has a breathing tube down her throat which makes her unable. She is smiling a lot & using her hands to try to communicate. She will likely be in ICU for a couple more days. They still haven't sewn up her stomach because they want the swelling to go down first. Excited about progress! Update 8/04/2011, 8:45 PM: Josie is in ICU and her vitals are good. She took longer than expected to wake up, but has now opened her eyes several times & attempted to talk. We are still waiting for her new liver to start working with her body. Update 8/03/2011, 6:33 PM: Josie is out of surgery & she now has her new liver! We will talk with the surgeon soon to find out the details on how things went. Update 8/03/2011, 3:37 PM: Josie is still in surgery. They have removed her old liver & put the new one in. Everything is going well & it should take a few hours to finish things up! Update 8/03/2011, 8:54 AM: Josie went into surgery around 3 AM this morning. She is still in surgery & will probably be until noon or so. Thank you for the overwhelming support we have been receiving! Update 8/02/2011, 6:00 PM: We just got the call back. It's a go! Jo is en route to Children's Hospital. Thanks to all of you for your prayers & support! Update 8/02/2011, 10:25 AM: We just received a call from Seattle Children's Hospital! THEY MIGHT HAVE A LIVER FOR JOSIE!!!! Waiting for a call back! Praying!! Update 7/27/2011: The link to Josie's song "Heal the Impossible" is now available on this website. You will find it under the pictures on the left side of this page under the title "RELATED LINKS" Update 6/16/2011: UW confirmed that someone is testing to be a live donor! Update 5/19/2011: Someone has stepped up and requested to be tested to be a donor. THANK YOU! We will give an update when we hear something from UW. Update 12/16/2010: Josie just turned 12 years old. We are still looking for a living donor that can provide her with the liver she desperately needs. Update 10/19/2010: The latest potential donor is not a match. We are praying God will bring a donor match that will give Josie the new liver she needs. Update 8/9/2010:  A new potential donor has stepped up and is in the process of trying to setup testing.  Keep Josie in your prayers! Update 7/14/2010:  Live donor testing for the latest potential donor has completed and is NOT a match.  We still need a donor.  If anyone is interested, please e-mail us at ARMSTEK@COMCAST.NET.  Keep us in your prayers! Update 5/12/2010:  Josie's uncle has volunteered to donate a portion of his liver and is currently scheduling the tests to see if he is a candidate. Update 4/30/2010: We have had a few people step up, offer to be donors, and fill out the paperwork.  No word yet from our UW Medical Center coordinator if they are willing to test them yet.  They still would like us to find more potential donors.  If you are interested, e-mail us at ARMSTEK@COMCAST.NET.  Thank you all for your support! Update 4/20/2010: Josie's dad received a call from the Transplant Surgeon today. He is not a Live Donor match. Apparently, the operation would be too risky for him because of where his bile ducts are located on his liver. This news is devastating, but we will continue to pursue all possible avenues to get Josie the new liver she needs. Donor candidates would need to be between 25 & 55 and have Type A or O blood.   Josie's story Josie was diagnosed with Biliary Atresia at six weeks old; Biliary Atresia is a rare liver disease that causes cirrhosis of the liver. At eight weeks old Josie had the Kasai procedure which sews her liver to her intestine so bile can drain from the body. Although there have been bumps in the road, Josie has weathered each storm amazingly well over the past 12 years. Recently however things have taken a turn for the worse. Josie hasn’t been feeling as well lately and has many symptoms that are concerning. Some of the symptoms include itchy skin, jaundice, bloody stools, swollen spleen and liver which causes her discomfort and her stomach is noticeably larger. Josie has even experienced stunted growth and it’s easy to see since she has a twin sister who is in good health. Our Family has been working with the talented doctors and staff at Children's Hospital in Seattle to plan the transplant process. The best possible scenario for her would be to receive a liver transplant from a Live Donor. In this process a living donor undergoes an operation that cuts the working liver in two, with half going to Josie. We have begun the testing process and are quite hopeful that I will qualify to give my daughter the liver she needs. As Josie’s father I’m more than willing to do anything it takes to save my daughter’s life, but we can't do it all on our own, we need your help. Despite Josie’s disease, she plays competitive basketball (her favorite sport), competitive soccer, writes and sings songs (she has sang for youth groups, her school, and a local TV station - see attached YouTube video), really wants to get voice lessons and learn how to play the guitar (thank you Nathan for giving her lessons!), gets straight A's in School, has a super positive attitude, and has a great sense of humor (She recently said with a laugh, "I don't want to be the short, squatty, yellow girl when I get to High School") Josie is a gift from God. We thank you so much for your prayers and support.  
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