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$675 of $12,000
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7 donations

This fundraiser ended on 01/28/13

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Maggie, a medical mystery!

Maggie is a fun loving 7 year old child. She was born with a heart defect that was repaired when she was 8 months old. Maggie loves meeting new people, coloring, puzzles and loves to help others. It saddens Maggie to see someone hurt or sad, she is very caring, and always has a smile on her face. My little girl has numerous symptoms, including failure to thrive, turning purple, delays in learning and autistic tendencies just to name a few. We were told by her neurologist that although she displays many autistic characteristics, she is not autistic, but has something more complex, long story short, she is a medical mystery. There is a test that has been around for a year that might be able to shed some light to what is going on with her. The problem is that the test is so new, that insurance does not cover it, and the cost is well over $7500 (just for the test alone). We really need some answers, we have no idea what she has, how to treat it, and if new symptoms will occur, and we don't know what the long term side effects are. Please help us spread the word. We are desperate for answers, it is hard waking up every morning knowing that you still don't know what is wrong with your child.  Every single donation is appreciated, and no donation is too small.  The name of the test: Whole Exome Sequencing
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