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This fundraiser ended on 09/02/11

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The family and friends are raising money to provide Niyah with helping hands. Funds will be used for uncovered medical expenses.

A visit to the dermatologist on February 24, 2011, for what was believed to be an extreme case of eczema has led to a visit to a Pediatric Rheumatologist, an emergency room, Pediatric Opthamologist, MRI, Pediatric Cardiologist, and at the end of April, Pediatric Pulmonary.

Niyah, who turned 9 in February, was diagnosed with Mixed Connective Tissue Disorder (MCTD) and Dermatomyositis(dur-muh-to-mi-uh-SI-tis) on March 14, 2011. Mixed connective tissue disease (MCTD) is a rare autoimmune disorder that causes overlapping features of primarily three connective tissue diseases - lupus, scleroderma, and polymyositis. MCTD may also have features of rheumatoid arthritis. For this reason, mixed connective tissue disease is sometimes referred to as an overlap disease. MTCD is a rare autoimmune disease in which body's defense system attacks itself. The type of medication prescribed depends on the severity of the disease and the symptoms. Corticosteroids are the most common treatment for mixed connective tissue disease. Corticosteroids such as prednisone help control the immune function, keeping it from attacking healthy cells, and suppress inflammation. Nonsteroidal anti-inflammatory drugs (NSAIDs) can relieve pain and reduce inflammation. Oral NSAIDs can cause stomach upset, so some prescription NSAIDs come in a patch that you affix to your skin or in a gel form that you can rub on the painful joint. Other immunosuppressants may be based on your signs and symptoms.

Dermatomyositis is a rare inflammatory disease marked by muscle weakness and a distinctive skin rash. Therapy of the muscle component involves the use of anti-inflammatory medicines called corticosteroids with or without an immunosuppressive agent or drugs that suppress the immune system. The skin disease is treated with sun avoidance, sunscreens, and topical corticosteroids.

On Saturday, April 9, 2011, Niyah setup for business “Niyah’s Boutique” at a local community center event to sell her very own hand made jewelry items, tissue holders, and pillows. She advised her customers their purchase was to help pay for her medicine. Please join Niyah, family, and friends by lending a helping hand. No amount is too small!

If you would rather mail a check, please make check payable to Niyah Nock-Barrow and use the address below:

Niyah Nock-Barrow
C/O Charltha Nock
2500 Fleet Avenue
Henrico, Virginia 23228

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