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This fundraiser ended on 07/31/12

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This is the Elliott Biggert Wilms Tumor/PPB/DICER1 treatment fund. The funds will be used for Elliott's medical costs and related expenses

Elliott was born on June 29, 2011 weighing in at 10 Ibs 9 ounces. Within a few hours after delivery the nurse found him blue. He was immediately sent to the NICU and we learned that he had Pneumothorax. He had his first ambulance ride within 48 hours of being born. After a week and a half in the NICU they sent him home with a clean bill of health.

Elliott has had great baby well check ups and has only had one cold his entire life. He has never even had a fever.

On March 29, Elliott went in for his 9 month baby well check up. Everything seemed fine until his doctor felt the left side of his abdomen. when she pushed down on his abdomen it was hard. She asked us how long his stomach had been like this. We had noticed how big it was just this past week but thought it was just his big belly not a tumor. She had blood work done and sent us to have an ultrasound where we would get the results. After talking with a doctor at Vanderbilt they had us go back to Elliott's pediatricians office to get his diagnosis. She immediately told us to sit down and that she had bad news. From there we learned that he had a mass in his left kidney and a smaller mass in his right kidney. They believed he had Wilms Tumor. Elliott has shown no signs of cancer so we have been in shock since we found out.

The next day we went to Vanderbilt Children's Hospital so Elliott could have a CAT Scan done and we could get his final prognosis. After hours of lab work and waiting we found out that he had a 15 cm tumor in his left kidney and a 3 cm tumor in his right kidney. Fast forward a month later and after a quick (less than 12 hour's before chemo) decision, we went with a biopsy first instead of chemotherapy and it has now been determined that Elliott has cystic partially differentiated nephroblastoma. This is a rare cystic variant of Wilms tumor (1%) with unique pathologic and clinical characteristics. Elliott's a major fringe case where he has it bilaterally. We had a successful surgery (May 1st) where the entire right kidney was removed and the left kidney partially removed where the tumor was. Elliott recovered incredibly.

A little over 2 months later, we were informed that Elliott was found to be a carrier of the DICER1 gene mutation. This is a predisposition to Pleuropulmonary Blastoma and, in his original CT scan, they found 2 possible lesions in his lungs. We are now set to have surgery in 2 weeks (July 5th) to remove 1 or more lesions in his lungs and start treatment for PPB (which we don't know much about because... you guessed it, it's an incredibly rare childhood lung cancer). So at this point, it's almost certain Elliott will need chemotherapy after surgery but hopefully his DICER1 gene mutation diagnosis will not affect him and both the kidney tumors and PPB tumors will not return.
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