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This fundraiser ended on 01/04/12

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Any funds donated will help cover the cost of getting Heather back to her bouncy self. Thank you and God Bless!

My daughter developed a rare condition called Polymyositis. February 2010, she was unable to move, unable to lift her own head off of the bed. being an active 16 year old, this devistated her.

What are the treatments? She is receiving IVIG treaments every 3 weeks which have her able to do things on her own, almost like before this started. Problem is the treatments are $35,000 each and our insurance company is fighting us to pay them plus we have a high deductible.

She is now 17 years old, unable to get a part time job, unable to get a driver's license, doing homeschooling since she didn't have the strength for moving from class to class and still going for treatments every 3 weeks. My husband was laid off from his job and took a lower paying job so he wouldn't be on unemployment. Social security has denied us help saying since she is 17, our income is too high and we can reapply after she is 18.

All of our dedutibles, travel expenses and who knows what other charges are adding up fast. So far this year, her IVIG expenses have been around $350,000. Hopefully the insurance will pay for that and we will just have the deductible.

We just want our active, bouncy teen back. This has hit us from nowhere. We were not prepared for this at all.
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