$0 of $10,000
0 donations

This fundraiser ended on 09/19/10

Create a fundraiser like this

My name is Brandi Barnett I am Jaylins mom. Jaylin is my Angel! and in her honor we are raising money and awareness of Seizures involved with LGS.

Hello, Were starting this annual event to help our community be aware of and understand more about seizures and epilepsy, as well as the disorder Jaylin has. Jaylin has a severe form of childhood epilepsy called Lennox Gastatut Syndrome.

She has multiple seizure types,mental retardation, and a specific brain wave pattern that causes difficult to control seizures from the entire brain. Jaylin is ten and functions at a three year old level. She laughs alot and is a delightful little princess whom we all are madly in love with. Jaylin got diagnosed with LGS when she was two years old and has had seizures since she was five months old. She was only twelve pounds the first time she had a seizure and was air lifted to the nearest childrens hospital and my husband and I were taken on a roller coaster ride of medications, seizures, ER trips, doctors, specialists and many many nights on bended knee in prayer!

Jaylins first seizure lasted three hours and forty five minutes and we believe caused the most damage. Jaylin has been on a total of eighteen different medications to control seizures and has an implant in her chest called the Vagus Nerve Stimulator. Shes also been on steroid injections and the Ketogenic DIet. Jaylin currently is on five different antiepileptics and the VNS is turned all the way up! She is considered to be a well controlled LGS patient and she still seizes weekly!

Between all this seizure activity Jaylin attends school in a Life Skills class here in Stephenville and is adored by many therapists doctors and her Angel League TBall team. We as a family want to  help people understand the effects seizures have on a person and I want to encourage everyone to come on the day of our fundraiser here in stephenville and walk for Jaylin and for anyone you know dealing with any type of seizure! All money and proceeds will go to the LENNOX GASTAUT SYNDROME FOUNDATION.

Our fun run and day at the City Park is set for Saturday September 18th 2010 You can visit the LGS foundation to register It is ten dollars to enter the race and for the tshirt. We hope to see as many people as possible Come support Jaylin and any person in your life that is affected by seizures.

View more

Supporter activity

Login to post a comment
or Login