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This fundraiser ended on 01/30/13

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The family and friends of Miranda Johnson-Petteys are uniting to raise money to help with her battle against Chronic Renal Failure stage 5.

I want to tell you about my cousin, my hero.

Every little girl dreams of a fairy tale lifestyle they want to live when they get older. But for Miranda her dream of having a family of her own, and being a physician's assistant started to slowly come to a halt more and more as the years passed after her 8th birthday.

Being diagnosed at the age of 8 with Kidney disease wasn't what Miranda's parents had in mind for their child. But for the years until she was 17, she was able to live a semi-normal life as her parents made sure of it. Her doctors requested that she followed a renal diet, and kept up with her doctor's appointments and routine blood work.

Shortly after she turned 17, her doctor told Miranda and her family they needed to start to think about dialysis; something that would change her life completely. This meant missing hours at school, and more complications she never thought she would be dealt with. Shortly after starting her dialysis had started, Miranda visited Albany Medical Center and started the process for a Kidney transplant.

Miraculously both of Miranda's parents were matches for her kidney transplant. Her mother had the chance to give her a second chance at life.

After waking up from her surgery, her family had been anxiously awaiting her arrival in the waiting room to greet her. To show her the support she had deserved, and to help her down the long road she now had ahead of her. Her days now consisted of endless amounts of medications, blood work and doctors appointments.

On June 7th, 2003, at the age of 21, Miranda had that one extraordinary day every girl fantasizes about. She married her best friend and high school sweetheart, Dan. Together with family, we celebrated her new life. A life she was now able to share with someone who would be by her side at every waking moment of every single day.

A few short years later, in 2005 to 2008 after constantly feeling depressed, weak and drained at all hours of the day, it was a sure sign Miranda needed to be hospitalized. Not thinking it could get any worse than her 3 previous years of battling with sickness and Pneumonia; she was forced to face the reality that she had now lost her transplant. Something we don't all know how feels. There wasn't enough of her own tears shed to explain the amount of sadness and pain that she had just had placed on her shoulders.

Once again she has now been forced to live with two and a half hours of dialysis, six days a week since 2009. Her health coming and going, and the numerous attempts to have a fistula placed into her drained body, she still waits for her chance to have another kidney transplant.

Every aspect of this debilitating disease is costly. Not only financially; but mentally and emotionally. We all do our best to help Miranda in her daily fight. She needs financial help. She needs help to afford the medical expenses that pile up every day until she receives a transplant to help against her battle with end stage renal disease.  

If you would like to find out any information on how to be a organ donor contact Toby Rockwood from Fletcher Allen.  Phone: 1-802-847-4774  Email: toby.rockwood@vtmednet.org

From the bottom of my heart, as well as the friends and family of Miranda we thank you for your support and generous donations.

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