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$6,771 of $10,000
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96 donations

This fundraiser ended on 04/02/12

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The friends, family and community of Adam Wechsler are uniting to provide Adam basic transportation: a modified van.

Adam Wechsler is a 15 year old boy and a sophomore at MMU where he earns academic honors. He is a dedicated Boy Scout working toward the rank of Eagle with Troop 627. Adam is the oldest of two boys and enjoys vacationing with his parents and brother, playing the drums, cooking, swimming, video games and hanging with his friends.

Sounds like a normal healthy boy, except that Adam was diagnosed with Duchenne Muscular Dystrophy (DMD) at the age of three. DMD is the most common lethal childhood genetic disorder, affecting 1:3500 boys. Adam’s parents rose to the challenge of raising a child with DMD, and since 2001 have lobbied for federal funding to improve basic care standards, treatment and ultimately a cure.

Adam’s courage and stamina have been remarkable and he has continued to impress both his family and his doctors. Adam has voluntarily participated in several clinical trials, had his gene sequenced at the University of Utah, volunteered himself for medical testing and biopsies, and tested the safety and efficacy of PTC 124 (Ataluren) at Children’s Hospital in Philadelphia. He has also patiently waited in an MRI machine at UFL in Gainesville, FL. During all of this, Adam hoped his sacrifices would lead to treatments, maybe even a cure.

Adam received his first motorized power chair in the summer of 2010; by the spring of 2011 Adam was unable to walk unassisted. Making the transition from limited mobility to total reliance on his chair was difficult to say the least for Adam and his family. It was accentuated by the exhausting, and often frustrating, process of working with insurance companies while trying to afford the costly care that might allow Adam access to some small degree of normalcy. Both of Adam’s parents work, and yet dealing with insurance companies is a full time job, as the process of submissions, approvals, denials and appeals is never-ending, and more often than not, disappointing.

At this point in Adam’s life there are several home modifications the Wechsler’s are pursuing so that Adam can have a basic, independent, and quality life. The things most teens take for granted, Adam cannot. The priority is to afford a modified van so that Adam can actually get to school, doctor’s appointments, physical therapy, swim therapy, Boy Scouts, maybe even a movie theater, a shopping mall. Not small stuff when you are 15!

Please, give what you are able and help us raise the funds necessary to provide Wheels for Wechsler! With a modified van Adam can experience equal and mobile access to his world. Your donations will be so gratefully appreciated!
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