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$410 of $10,000
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5 donations

This fundraiser ended on 10/25/10

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Ben Cutbirth had his first clonic-tonic seizure on January 10, 2010. Two weeks later he had another one. Since then he's had hundreds of seizures, made multiple trips to the ER, is currently on 8 medications and still has 20 seizures a day.

Ben Cutbirth is a lively, fun kid who loves to play with his older brother and younger sister. On January 10, 2010 his life changed forever. He had his first clonic-tonic seizure while playing at his grandma's house. Ummie (as the kids lovingly call "Grandma") called 911, Tammy & Jeff came home from their movie, and the rest of the evening was spent on pins & needles as the family anxiously awaited the doctor's verdict. At that time it was determined the seizure was an isolated event and the entire family breathed a collective sigh of relief. Unfortunately, the original determination was incorrect.

The next few months were filled with multiple seizures - ranging from a quick jerk of the arms to full multi-minute clonic-tonic seizures. He has made many, many trips to the doctor's office as well as the emergency room. He's gone through progressively detailed diagnoses, from general seizure disorder to Catastrophic Childhood Epilepsy. He has been given many different medications each with their own set of side effects. Some meds have decreased the seizures only to "wear off" after a couple of weeks; while others have had no effect on the seizures at all. The Cutbirths have learned that treating seizure disorders is a lot like playing the lottery: you keep picking different treatments until you finally find one that is a winner. So far, they have not found The Winner.

The result of this treatment style is that Ben's family now has mounting medical bills - with no end in sight. Currently their portion of bills - after insurance - is hovering close to $10,000. We have friends and family members who are hoping and praying for a resolution to Ben's medical treatment quandry to ease the emotional and physical burden.  We appreciate and encourage those to continue. Now we are asking for donations to help ease the financial burden as well.

Please give what you can to help Ben and his family afford the treatment, doctor's visits, medications, and special diet on his path back to living a normal life.

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