$3,506 of $20,000
55 donations

This fundraiser ended on 11/07/13

Create a fundraiser like this

This fund will help get me listed for a transplant.The initial amount required is $20k for the hospital and help with the $3k monthly meds.

Hello, my name is Sean and I have battled heart disease all my life. Now, at 47 I am in need of a heart transplant. In Feb of this year I was also informed that I would need a liver transplant as well due to my heart failure and the excess pressures my heart has put on my liver. Here's my story. I was born with transposition of the great vessels and a hole in my heart, a congenital defect. The heart condition was only discovered at 8 months old by a pediatrician who was treating me for a damaged hip socket. He noticed a pronounced murmur and thus began my life as a heart patient. Not much was done as a child until the age of 12 because I really wasn't expected to live that long. At the age of 12 I had my first open heart surgery to repair a hole only to have the patch fail having to have the procedure repeated 6 months later. I was very young when I visited the Mayo Clinic for my heart and was suggested that I visit Children's Hospital in Los Angeles and be seen by Masato Takahashi, my childhood cardiologist. I have been in CHF (congestive heart failure) since the age of 12. I lived the only real life I knew by being in and out of the hospital for care. I have battled dangerous tachycardia (racing heartbeat) all of my life. About 7 years ago I had my first ICD (pacemaker/defibrillator) implanted at Dartmouth Hitchcock Medical Center in Lebanon, N.H. Since then I've had a total of 3 implanted and removed with the last being totally removed in March of this year. Since my heart doesn't pump well enough the ICD implants sites never completely healed causing them to be removed. My cardiologist, Leo Simpson M.D. at St. Luke's Hospital in Houston, TX will try again in July. This time, it will be implanted under my breast muscle where there is a greater blood supply and less chance of infection or rejection. I have been told over the last few years that there is not much else that can be done for me but a much needed heart transplant. I recently completed a series of tests that are required for me to be considered a transplant candidate and begin the process of being listed on a national list. I was told by heart transplant coordinators that I am an excellent candidate but their worry is that I cannot afford the anti rejection medications that I will need for the rest of my life after a transplant. I have also been told that the medications alone will be $3000-$5000 per month. I am required to raise $20,000 plus the cost of the monthly medications before I can be considered for the transplant. I am told they cannot waste a heart on someone who cannot afford to keep it going. I am on disability and work a part time job which does not even cover the medications I need now every month. I'm also a type2 diabetic and the supply costs are all out of my pocket. Being a part time employee does not qualify me for health benefits through the company with whom I've been employed by just over 7 years. Medicare will only cover 20% of the transplant and hospital care. I can obtain a Medicare part D prescription plan but they have out of pocket costs that I cannot afford even with my SSD (social security disability) and part time job. I am a father and grandfather and can only think about watching my grand babies grow up, that is my wish. I find myself needing help and never thought I would ever have to rely on the support or kindness of others especially those I have never met. Anything that you can find in your heart to share would be greatly appreciated. Thank you for taking the time to read my story and I would appreciate at least your prayers. Thank you again! Sean Caron

View more

Supporter activity

Login to post a comment
or Login