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This fundraiser ended on 02/19/13

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The family and friends of Neveah Wade coming together to raise money to find a cure for Mixed Connective Tissue Disease. Please support her

My daughter, My friend, My angel

In November of 2011 our world was turned upside down, My daughter Neveah Wade was admitted into the hospital with Mercer, Her diagnosis was, severe eczema with celluitis. She was hospitalized for two weeks, when she was discharged, we thought that all are troubles were over. Yet they were just beginning.

For the next four months, we were in and out the hospital every other week for days at a time, sometimes weeks.
but they just kept saying, it was just a severe case of eczema and cellulitis. As a mother I knew something more was wrong with my child, I just didn't know what.

I knew something was going on that wasn't normal with my baby. I wanted answers, but no one could help because, they were just as baffled as I was. I started questioning my parenting skills on what did I do wrong, she was losing hair, not gaining weight, Her skin looks like she is a burn victim because its discolored so bad.

So in May when she was hospitalized, they started questioning if they may have misdiagnosed her. They started taking labs, labs and more labs. It is now a year later and she has finally been diagnosed.

My daughter has Mixed Connective Tissue Disease (MCTD). Mixed Connective Tissue Disease is an autoimmune disorder that causes overlapping features of three connective tissue disorders: lupus, scleroderma, and polymyositis. MCTD may also have features of rheumatoid arthritis. This condition is most often diagnosed in women in their 20's and 30's. Occasionally, children are affected. At this time the cause of this condition is unknown.

pediatric mixed connective tissue disease from individual case reports to small series. Mortality is 0-50%. The review by Michels found a mortality figure of 7.6%.[6] More recent data assess pediatric mortality at 3-4 per 1000 population versus adult mortality at 12-23 per 1000 population. Serious organ involvement included 47% of patients with renal disease, 54% with restrictive lung disease, and 29% with GI disease. Although rare, morbidity from cerebral disease, cardiomyopathy, myopericarditis, and pulmonary hypertension has been reported and is associated with a significant risk of mortality.

This disease is a rare but deadly disesase that has affected my daugter and my whole family. They have yet to find a cure. With your help we can find a cure for my daughter and other children that has this rare life threatening disesase.
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