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This fundraiser ended on 09/10/12

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Sebastians family is trying to raise money for a special trip to Disneyworld to help him meet all of his friends he knows from the movies!

Our son Sebastian was diagnosed with Treacher Collins Syndrome when he was born August 22 2009. We had no idea that he was going to have this lifechanging syndrome until we saw him and the doctor told us something was wrong. He would not eat cause he could not breath due to another issue, he had no airway through his nose.First he was given a g-tube for feeding and also his tongue was sewn to his lip cause he was coding in the NICU numerous times. This did not work so he was given a tracheotomy after his first month of being in this world. We lived in the hospital for 3 months and it was hard but we made it. He has been through many surgeries and he is home now, as a matter of fact he just got his trach removed and now we can take trips. Our goal is to take him to disneyworld this fall as he loves all of the characters and watches all the movies. Please help us to raise money for the trip anything helps and we are grealty appreciative. Thank you very much!
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