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This fundraiser ended on 08/10/12

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Devon is six years old , I am a single mom of two and cant afford the trip and he really needs to add quality to his life.

Devon has severe threatening allergies and EE see aped.org for more info he needs to go to Mt Sanai Hospital to see a specialist . He takes risks everyday by being exposed to things we take for granted. His latest episode put him in the ICU an we almost lost him.
Devon cant enjoy all the things a normal boy can. His diet consits of corn and potatoes and a formula called Neocate.

We can go to Wendys and all he cann order is fries..
I have had to renovate my house due to his allergies thru the years draining all my money,,

His skin is so dry and cracked and bleeding. He scratches all the time he uses five differnt creams..

He attends school at home in a office I renovated for him. He uses a system called VGO its a remote controlled webcam that he controls from here.His classmates cans see and interact with and vise versa,
Why do we have to go to NYC is because the Drs at The local Childrens Hospital dont know how to address his treatment.
He has tried chicken on a food trail which led him in the ER..
His airborne allergies make it so hard for him to do everyday activites. We have Cubscouts at my house but we take precautions, Even the smell of Bounce closes his throat..

I have a BSW and I havent been able to work in five years due to Devon at first but I ahve been diagnosed with Fibermaligila ans am in pain . I still take care of my boys and suffer both physcial and emotional pain. I have gone thru some many cose calls with Devon but try to keep a positive attitude.
My funds are exhausted all the extras Devon requires cost and of course insurance doesnt cover them.

This trip is going to be costly I am only looking for the cost of the hotel which is 599.00 dollars a night...
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