Whoever brings blessing will be enriched, and one who waters will himself be watered.—Proverbs 11:25
We have reached our goal (this was our THIRD goal) of $10,000 in less than a monthl! We are now aiming for $12,000! The support has been amazing and a true testimony of God's work around us and through us!
Also, we changed the deadline for October 15th in order to get them the check before leaving on November 2nd. Thanks for spreading the word about our Maggie girl!
Even if you've already given please recheck this website as we will post a video of Jenna and Chris when we SURPRISE (remember this is a surprise) them with this offering of love. Most of us tear up just thinking of that moment of relief and overwhelming support they might feel!
Hello friends! Many of you have had the privilege to know two of the most special people God ever created…Jenna and Chris Bailey. As friends of Jenna and Chris we find it necessary to show them how much they mean to us by contributing to a special need that has been placed before them. Last December they, as well as the rest of us, were blessed beyond words to welcome sweet Maggie Katherine Bailey into this world. Maggie has been diagnosed with Osteogenesis Imperfecta and Jenna and Chris have decided, with much prayer, to travel to Nebraska where Maggie can be seen by an OI pediatric specialist. We hope that you find it in your heart to help our friends as they search for answers and receive the best possible treatment for Maggie.
THIS IS A COMPLETE SURPRISE TO JENNA AND CHRIS THAT WE WILL PRESENT TO THEM JUST BEFORE LEAVING FOR THE TRIP. PLEASE HELP TO KEEP IT A SURPRISE!!!
If you have any questions or comments please email us at: firstname.lastname@example.org.
See an excerpt from Jenna’s Blog explaining Maggie's journey:
“During my 20 week ultrasound, the doctor noticed that Maggie's left femur was short and bowed, and that her left tibia/fibula was severely bowed. We were hoping that there was just some sort of issue when her leg leg was formed, and that we would not find any other problems. As the pregnancy continued, it looked as though all of her long bones were short and that her feet and hands were clubbed. The perinatologist broke the news to us a day before Thanksgiving that Maggie had some type of skeletal dysplasia...most likely achondroplaisa. We were shocked and so devastated. While we definitely realized that there are many, many other genetic disorders, and that so many of them are way more devastating and severe than a skeletal disorder, we were still so upset. We worried about the numerous surgeries and health problems Maggie may have due to dwarfism, and we worried about the emotional suffering she may have to endure by being different...not to mention that in no way did I feel qualified to be the mom of a special needs baby. The day she was born we were surrounded by so many friends and family and covered in prayer by not only our closest friends, but also by complete strangers, as I later learned. After an easy labor and delivery, Maggie came out screaming like a mad woman at 1pm on December 29th. She looked so much better than what we were expecting! Upon first looking, her left leg was definitely short and bowed, but her other bones looked fine. She weighed 4.4 and was 17 inches long. I cannot describe the feeling of calm and relief that I felt holding her for the first time...something I had not felt in 20 weeks. She was beautiful! It did not matter what kind of disorder she did or didn't have, she was our precious angel and we would do whatever we had to do to make her life wonderful. Later that day the Neonatologist, Orthopedist, & Genetics Specialist came to my room and told us that they were pretty certain that Maggie had a genetic disorder called Osteogenesis Imperfecta...aka Brittle Bone Disease. The disease occurs when there is a mutation on of of the genes that controls collagen formation, resulting in inadequate collagen in the bones, either by effecting the quality or quantity. This makes the bones easily broken, and makes the person shorter than average (most are considered little people). There are four main types of OI that vary by the type of mutation and physical symptoms. The doctors thought that Maggie had type IV (the types are not in order of severity), which is moderate in severity, but had to confirm by genetic testing. After a 5 day NIUC stay, Maggie came home to two very nervous parents. When Maggie was about two months old, we received the results of her blood test. It confirmed that she did have OI, but her mutation was consistent with type II OI...the most severe, and often fatal type! Since Maggie had not had any new breaks and did not appear to be as severe as a type II, the doctors were puzzled. We had noticed a few things on Maggie's body that led the Geneticist to believe that she had something called Mosaicism...that could be lessening the effects of the type II mutation. Mosaicism is when there are two or more cell populations in the genetic makeup of a person and the proportion of normal to abnormal cells will determine the severity of the disorder. How crazy is that!! What a blessing!! My heart changed from crying out in sadness "why my baby?" during the pregnancy, to crying out in joy "why my baby?" after this news. The Lord really humbled me during this time and taught us so much about the amazing love of family and friends (and co-workers), the power of prayer, and trusting in His perfect will.
Since this diagnosis we have just been doing lots of research, being careful, and just enjoying our sweet girl. We have met so many amazing parents of OI kids online that have given us lots of advice and encouragement. Since OI isn't super common, most of Maggie's doctors have not had a lot of experience with it. We have an Endocrinologist & Ortho here in Birmingham, but have decided to take her to an OI clinic in Omaha this fall to be seen by a group of experts in OI. We will go once a year for a checkup and probably have her leg surgery done there. She is also about to start Pamidronate infusions, which is a biphosphate drug that will help strengthen her bones & reduce any bone pain. Since Maggie's mosaicism makes her type of OI different, we really don't know what to expect. She has all of the physical symptoms (blue scalera, larger/heart shaped head, small body, excessive sweating, flexible joints), but has not had any new fractures since the pregnancy! Some kids don't start breaking bones until they are toddlers, so we will just have to see what the future holds. All we know is that we could not be more thankful and in love with our girl. We would not have her any other way!!”