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This fundraiser ended on 12/12/12

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Cassidys loved ones are uniting to raise funds to get her to the worlds leaders specializing in her very rare genetic disorder.

Cassidy is my lovely 3 year old. She stopped breathing at birth and we spent 2 long month to discover she had CCHS (congenital central hypoventilation syndrome) This means that if she fall asleep without life support equipment she will die. Her brain does not possess the ablility to tell her to breath when sleeping. Furthermore when she gets upset she holds her breath and stops breathing and since her brain will not tell her to take a breath at this point she turns stiff and blue and requires immediate medical intervention to keep her from dying. She requires a medically trained person to watch her at all times to intervene with medical equipment and oxygen in the event that she falls asleep or gets upset.Cassidy has a tracheostomy and ventilator as well as many monitors. We are attempting to raise funds to assist us in getting her and her team of care givers to the upcoming CCHS conference to meet with the worlds leaders in this disease. Since it is such a rare and unheard of disorder this is a very special opportunity for us to learn more about her care and disorder as well as a chance to see that she is not alone.
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