The Family & friends of Alexis and Taylor are uniting to raise money for the girls medical costs & related expenses not covered by insurance
I-Cell disease is a very rare metabolic storage disorder called Mucolipidosis II or "I Cell." Alexis and Taylor are missing the Lysosomal enzyme which is responsible for breaking down complex carbohydrates in cells. Due to this missing enzyme, their little bodies experience a build up of storage material on their hearts, bones, lungs,...etc. The doctors only gave Allie and Taylor up to 10 years at the most to live. However, we know that God has the final say. We know that He is the creator of everything and we are still believing God for miracles for my beautiful girls.
We have health insurance, but it doesn't cover everything such as a wheel chair van or modification if that is possible. The financial burden of all this is beginning to weigh down on us. So it's with humility and hope that we turn to our family, friends and loved ones for support.
We have been extremely blessed by all the support shown on here and through out our community. Recently our ramp was built and paid for by some very generous people who have recently come into our lives. Thank you Mr. and Mrs. Stoltzfus who funded this project and have taught us so much about giving and blessing others in the midst of struggles, to Phil, Karen, Shanna and Jerry for organizing and heading up the ramp project from the beginning. We love and appreciate you all!
Some upcoming events we are having is a fundraising event at the July 30th game of the Lancaster Barnstormers! All ticket sales for this game that are bought under the promo code GUINTA, will go to the girls!! Just click http://lancasterbarnstormers.com/
fundraising_partners.cfm and then go to "Don’t See Your Group Logo Here? Click Here To Enter Your Code!" Enter GUINTA (They are working on the picture and they did spell our name wrong, but this is it.) Then you can purchase the tickets there! Jon will get to throw the first pitch and then they will present us with the check! There will also be fireworks! So if you can, come on out for an awesome night!!
We also have a "Hope Through Hilarity" event hosted by our church! You can purchase tickets and find out more information by clicking the following link.
https://flcc.smartevents.com/public/events/hope-through-hilarity. All proceeds will benefit our family!! Come on out for a night of fun and laughter!!
Finally, with everything going on and the fact that we are able to check the ramp off our list of expenses, we will be ending the auction early (In about 2 weeks or so). This is the last big push! Please let everyone know about their site at giveforward and spread awareness about I-cell disease. We are so grateful to everyone for blessing us. We would love for you to stay updated, so please if you would like, e-mail me your e-mail address and I will send you updates and posting for the upcoming events. Thank you again! (www.giveforward.com/alexisandtaylorgiunta)
The one who blesses others is abundantly blessed; those who help others are helped.
Thank you to all of you who have blessed us we are truly amazed by your support and know that God will bless you as well.
Please also visit the girls CaringBridge site for more details and updates: http://www.caringbridge.org/visit/alexisgrace07.
If you would rather send a check, you can mail it to:
10 Kimberly Ave.
New Providence, PA 17560
Many thanks to all who have donated so generously.
We very much appreciate your support, love and prayers! Thank you.